Reactions when you tell people you have Parkinson's Disease?

Posted by kathy49 @kathy49, May 19 10:34am

This is not a question so much as a chance to share experiences. My doctor warned me about the reactions I would get. I am 77 so it is not an early diagnosis. He was right. People have all sorts of ideas about the disease most of which are not accurate. I have mostly only told other medical professionals as it is important in terms of what I am taking and how it might impact other conditions I have. The nurses' reactions are sometimes shocking. "Oh I am SO SORRY. My grandpa died of that" and similar. I really get offended and correct their thinking. I have told few friends and mostly just family. Do other PD patients get those kind of reactions? I find it easier not to tell people now that the tremor is controlled. Any input on this.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

I was recently diagnosed with Parkinson's. No one I know has had it or knows someone with it. They don't know what to say except they are sorry. They haven't a clue about symptoms or how one deals with a disease that has no cure. I have just about every symptom and am learning how to deal with it. I really have no desire to socialize until I get it all under control. I am an 81 yr old female who has otherwise been very healthy all my life. Any comments?

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