Have you taken levetiracetam (Keppra)?

Be careful with Keppra, don’t count on it as a cure all. It can cause problems too. It can cause weakness and problems walking along with Dizziness, numbness, generalized weakness and tiredness all of which can lead to falls as can all Anticonvulsants.

@ryman
I don’t know how old you are, I’m just saying the following in case you are older, like me lol. The newest research is showing taking calcium and vitamin D doesn’t help build your bones stronger. Although they say to continue with it if your already taking it. Vitamin D helps get calcium into the bones and has many other benefits too. Not sure what I think of the latest news. Will have to go to use the computers at university medical libraries.

Welcome to Connect, @bensondexter
I'm confident that you will get response about Keppra from members sharing in this discussion. I also wanted to let you know that members are talking about amyloidosis in the Blood Cancers & Disorders group https://connect.mayoclinic.org/group/blood-cancers-disorders/

- Current diagnosis is Amyloidosis and multiple myeloma https://connect.mayoclinic.org/discussion/what-a-shocker/
- Diagnosed with AL Amyloidosis. What can I expect? https://connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what/

I'd like to clarify the timeline of your symptoms. Were you having falls before starting Keppra, and were prescribed Keppra in order to reduce the frequency of falls? Are the seizures a recent development related to amyloidosis?

I continue to take Gabapentin. I had the auto immune NMDAR encephalitis after a HSV encephalitis. I went through a half dozen anti seizure medicines (being allergic to Lamictal/trileptal). My pain neurologist Dr. Sandroni (Minnesota clinic) had started me on Gabapentin to help me sleep at night & for nerve pain. After having to keep changing anti seizure meds at local ER visits my mother had found out the anti seizure capabilities of Gabapentin I have just been on that successfully since 2014. Technically I am non epileptic but because of the damaged regions I have to take anti seizure medicine. Also having tested non epileptic but having frequent terrible seizures, they were diagnosed as "behavioral spells". However, this was before it was known, even at Mayo Clinic I was suffering from active autoimmune encephalitis which had been active for 7 months before trying a trial IVIG protocol, which once started was the end of those shaking/seizure spells. I always bring up the autoimmune encephalitis because it presents and is diagnosed differently.

I was put on Keppra and after about a month I had another petit mal seizure, so he upped my Keppra from 500 mg in the am/pm to 1000 mg am/pm. After 58 days I had 1 seizure on one day, then another the next, so he added Vimpat to it. So far so good. Over 80 days now seizure free. Keep in mind that Keppra can’t just be stopped. It takes a while to build up in your body to work and when changing, I was told I’d have to wean off of it for about 9 weeks while building up another med. I went through 2 pairs of glasses with changes in my vision, and it’s now stabilized... but I itch wherever there’s a crease in my body and where sweat can build up, sometimes to the point of wanting to scratch my skin off, but even that is better than having a seizure.

@valm

Your so right. You never want to abruptly stop any Anti-Convulsant. Potential of having Convulsive or Non Convulsive Status Epilepticus which you never want to experience. Are you switching from Keppra to Vimpat as a mono therapy to control your Absences? Let us know how you get along.
Jake

Hi Jake. No they added the Vimpat to the Keppra so I take both.

@jakedduck1 Leonard l want to ask you a question, like l said before l am still falling and have been since my first brain injury. Now since 2014 it's been getting worse you never no when it's going to happen. The neurologist l had said l had partial seizure. Now the neurologist l have or you might say had said its non-epelitic seizures. I just fell recently at my doctors off ice and had to go to the hospital and the same diagnosis but l am still on keppra and sometimes my speech will be slurred, tremors and unable to walk. I confused if its seizures or non epileptic seizures. I have had so many neurologist and have had different diagnoses and l have had convulsions and sometimes l can be conscious or unconscious. Just thought l would ask you since you have had seizures for along time.

if you research the ingredients in keppra it has titanuim dioxide in it a carcinegen that causes cancer and it has aluminum also which is damaging to the brain.the pharmacies what to make sure you keep having problems and have to keep taking meds and most plls are from china and india and our fda has no control over not that the fda would do anything anyway it is all about money

@joedavid you are so right about the FDA investigating medicine from China. I heard that on the news. I have been taking it since 2014. So after you posted what's in it l definitely not taking it anymore. I am weaning myself off all my meds. Instead l going natural or maybe nothing just get my weight together and eat healthier than maybe l won't have the problems lm am having. Also they said you can use it for bipolar and l was already ruled out of having it by th he mayo doctors the ones here have to keep saying lm had a mental condition because they won't change the diagnosis because they could be exposed