Ryman
@ryman
@ryman
Posts: 151
Joined: Dec 09, 2012
Keppra
I have been prescribed Keppra for seizures. I have never actually had a seizure but the neurologist says that some of the weird things going on with me are related to seizures. I really don’t get on well with meds and am concerned about this one. Has anyone else taken it? Thank you.
Liked by Dawn, Volunteer Mentor, Leonard, Julia
robertjr
@robertjr
@robertjr
Posts: 69
Joined: Jul 14, 2017
@ryman I have to pick it up tomorrow. I see it has some weird side effects. I have problems with most, usually cannot tolerate them. I was just wondering about other people’s experiences with Keira. Thank you for moving my post.
bonnieh218,been on generic keppra for a month,before that was on dilantinfor 30 years,had lotsof side s and tookme about 3 days after a seizure to recover.at least the keppra isnt thatbad,only thing is went over 4 years seizurefree with dilantin since keppra 4 grand mals 1month..
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Dawn, Volunteer Mentor
@dawn_giacabazi
@dawn_giacabazi
Posts: 611
Joined: Nov 13, 2015
@robertjr ryman,Ive taken meds since i was five,for last 30 plus years on dilantin.have grand mal,tonic clonic,seizures.For some reasons my dilantin level has gone to toxic levels ,3 tjmes in a year.few months ago ended up in hospital finally brough level down again,went to see a neurologist afterwards,now on keppra,,toldlot cleaner than dilantin.In one month sincehad 3 grandmals with keppra,all three no warning.with my poor health now,have severe copd,had lungcancer in 2014,inremission.,haveing a mri onmy head next month,checking for cancerin head,.I just hope the keppra helps my seizures,besides thefact the seizures affect all of me for days now,especially breathing and severe headaches,im63 now,cant handle waking up in a mess on thefloor or ground notknowing whats going on .
@roberyjr
Have you been through the Seizure clinic at Mayo Clinic?? This is where we were finally able to pin point the exact causes and triggers and finally get on the right medication to treat my multi level complex seizures. I now just take 900mg of Trileptal 3 x a day. It’s been truly a blessing.
Here is a link if you are interested in learning more about the department. http://www.mayoclinic.org/diseases-conditions/epilepsy/diagnosis-treatment/mayo-clinic-experience-patient-stories/orc-20117254
Peace
Dawn
bonnieh218
@bonnieh218
@bonnieh218
Posts: 133
Joined: Feb 15, 2017
@robertjr ryman,Ive taken meds since i was five,for last 30 plus years on dilantin.have grand mal,tonic clonic,seizures.For some reasons my dilantin level has gone to toxic levels ,3 tjmes in a year.few months ago ended up in hospital finally brough level down again,went to see a neurologist afterwards,now on keppra,,toldlot cleaner than dilantin.In one month sincehad 3 grandmals with keppra,all three no warning.with my poor health now,have severe copd,had lungcancer in 2014,inremission.,haveing a mri onmy head next month,checking for cancerin head,.I just hope the keppra helps my seizures,besides thefact the seizures affect all of me for days now,especially breathing and severe headaches,im63 now,cant handle waking up in a mess on thefloor or ground notknowing whats going on .
I agree with Dawn. That’s where I found my answer also.
robertjr
@robertjr
@robertjr
Posts: 69
Joined: Jul 14, 2017
@robertjr ryman,Ive taken meds since i was five,for last 30 plus years on dilantin.have grand mal,tonic clonic,seizures.For some reasons my dilantin level has gone to toxic levels ,3 tjmes in a year.few months ago ended up in hospital finally brough level down again,went to see a neurologist afterwards,now on keppra,,toldlot cleaner than dilantin.In one month sincehad 3 grandmals with keppra,all three no warning.with my poor health now,have severe copd,had lungcancer in 2014,inremission.,haveing a mri onmy head next month,checking for cancerin head,.I just hope the keppra helps my seizures,besides thefact the seizures affect all of me for days now,especially breathing and severe headaches,im63 now,cant handle waking up in a mess on thefloor or ground notknowing whats going on .
thanks Dawn,right now had mri done today and put on3000 of keppra per day,if that doesnt work he will try something else.Just what i didnt want,musical chairs with tonic clonic meds,seizures starting to take a toll on me,
Liked by Dawn, Volunteer Mentor
Dawn, Volunteer Mentor
@dawn_giacabazi
@dawn_giacabazi
Posts: 611
Joined: Nov 13, 2015
@robertjr ryman,Ive taken meds since i was five,for last 30 plus years on dilantin.have grand mal,tonic clonic,seizures.For some reasons my dilantin level has gone to toxic levels ,3 tjmes in a year.few months ago ended up in hospital finally brough level down again,went to see a neurologist afterwards,now on keppra,,toldlot cleaner than dilantin.In one month sincehad 3 grandmals with keppra,all three no warning.with my poor health now,have severe copd,had lungcancer in 2014,inremission.,haveing a mri onmy head next month,checking for cancerin head,.I just hope the keppra helps my seizures,besides thefact the seizures affect all of me for days now,especially breathing and severe headaches,im63 now,cant handle waking up in a mess on thefloor or ground notknowing whats going on .
Prayers things settle down very soon!!
Thank
Dawn
robertjr
@robertjr
@robertjr
Posts: 69
Joined: Jul 14, 2017
@robertjr ryman,Ive taken meds since i was five,for last 30 plus years on dilantin.have grand mal,tonic clonic,seizures.For some reasons my dilantin level has gone to toxic levels ,3 tjmes in a year.few months ago ended up in hospital finally brough level down again,went to see a neurologist afterwards,now on keppra,,toldlot cleaner than dilantin.In one month sincehad 3 grandmals with keppra,all three no warning.with my poor health now,have severe copd,had lungcancer in 2014,inremission.,haveing a mri onmy head next month,checking for cancerin head,.I just hope the keppra helps my seizures,besides thefact the seizures affect all of me for days now,especially breathing and severe headaches,im63 now,cant handle waking up in a mess on thefloor or ground notknowing whats going on .
Dawn never been to Mayo clinic,,have heard good things,right now having problems with medicine.,spent time in hospital lowering dilantin level for third time in a year went toxic all of a sudden again.seeing neurologist in deleware now on keppra.Trouble is ive had grand mals since 5 but had been doing pretty good for awhile,except i now have severe copd and ostioperosis and the 4 seizures last month using keppra really take alot outof me..Im 63 now and each seizure just gets harder and takes more out of me.thats why im looking around,nd as of now cant just jump in car and drive somewhere .my wife does most driving but cant exspect her to chaufer me around.Been able to survive so far but feel like imloseing the battle.
Lisa
@techi
@techi
Posts: 359
Joined: Jun 18, 2017
Yes l have taken keppra, l had several diagnoses about seizure with the last one non-epileptic seizure. I was passing out and have been unconscious for seconds to as long as days unconscious the doctors don’t know the cause so l said to myself if they don’t think it’s seizures l might have well stop taking all these drugs. I had another seizure medicine and l took myself off that one also. Now maybe that’s not what you should do but that’s me so don’t do the same but l found out l am thinking clearly and not as tired. Now l was.on 8 prescribed medicines, 3 natural meds and 1 eye drop, and 1 liquid med. I feel l was a drug addict. So if l was you l would ask my doctor why you are taking it if you.dont need it. Because sometimes it will affect another part of your body. You are your own advocate and sometimes we are taking meds we don’t need. God luck
Liked by Leonard
I just started taking Keppra about a month ago. I suffered a couple small seizures one day on vacation and the next day had a full-blown seizure driving home (luckily I was the passenger) where I stopped breathing and passed out. I was in the hospital for a couple of days, have had numerous tests and they can’t figure out why. I haven’t felt “normal” since and feel quite alone dealing with my feelings about it. My poor bf was with me when I had the seizure, had to pull over and call 911 and was scared beyond belief and doesn’t really want to discuss it which I can understand. Not sure when I’m feeling the “Blues” if it’s a side affect of the Keppra or just not knowing why and if it will happen again. Anyone else experiencing anything like this?
Liked by Colleen Young, Connect Director, Leonard
ahernandez
@ahernandez
@ahernandez
Posts: 9
Joined: Jul 09, 2017
Hi, I’m 34yrs old and had my first seizure last March. I am also on Keppra. But also on a couple other meds. I was diagnosed with Autoimmune Epilepsy in Sept after many tests. I definitely understand “the blues” feeling. Some days are good and some I just want to stay in bed all day. And before my diagnosis the not knowing really effected me. Just take it one day at a time ( hard to do I know). Since being diagnosed I still have a hard time with “if or when will I have a seizure again”. Its very scary and if you ever want to talk you can PM too. Hope you find answers.
Amanda
Liked by Colleen Young, Connect Director, Leonard
@ahernandez Hi, I’m 34yrs old and had my first seizure last March. I am also on Keppra. But also on a couple other meds. I was diagnosed with Autoimmune Epilepsy in Sept after many tests. I definitely understand “the blues” feeling. Some days are good and some I just want to stay in bed all day. And before my diagnosis the not knowing really effected me. Just take it one day at a time ( hard to do I know). Since being diagnosed I still have a hard time with “if or when will I have a seizure again”. Its very scary and if you ever want to talk you can PM too. Hope you find answers.
Amanda
Thank you so much for your response. It’s nice not feeling so alone and that someone else has been there before. I will respond more a bit later. Have a great day!
@ahernandez Hi, I’m 34yrs old and had my first seizure last March. I am also on Keppra. But also on a couple other meds. I was diagnosed with Autoimmune Epilepsy in Sept after many tests. I definitely understand “the blues” feeling. Some days are good and some I just want to stay in bed all day. And before my diagnosis the not knowing really effected me. Just take it one day at a time ( hard to do I know). Since being diagnosed I still have a hard time with “if or when will I have a seizure again”. Its very scary and if you ever want to talk you can PM too. Hope you find answers.
Amanda
Anyone out there not able to drive? My neurologist feels I shouldn’t drive for a year if I don’t have any more seizures. The loss of independence is a hard pill to swallow!!! I feel like a child that needs babysitting.
@ahernandez Hi, I’m 34yrs old and had my first seizure last March. I am also on Keppra. But also on a couple other meds. I was diagnosed with Autoimmune Epilepsy in Sept after many tests. I definitely understand “the blues” feeling. Some days are good and some I just want to stay in bed all day. And before my diagnosis the not knowing really effected me. Just take it one day at a time ( hard to do I know). Since being diagnosed I still have a hard time with “if or when will I have a seizure again”. Its very scary and if you ever want to talk you can PM too. Hope you find answers.
Amanda
Because of some vision problems, I too could not drive (and still can’t at night). I do know the feeling of lack of independence. My daughter is currently having too many seizures and she too can not drive.
It may not be much help, but try to find any transportation that your town and city might provide for disabled. See if local government might have some special programmes, and anyone you know who goes shopping on a regular basis that you can hitch a ride with. Your Eipilespy Association may have ideas too. In order to feel less dependent on friends and family it is good to be able to make whatever plans you can. Look outside the box, even to Uber ride sharing if you have enough funds. Good luck and be as well as you can be. Patricia
Liked by Leonard
Lisa
@techi
@techi
Posts: 359
Joined: Jun 18, 2017
@ahernandez Hi, I’m 34yrs old and had my first seizure last March. I am also on Keppra. But also on a couple other meds. I was diagnosed with Autoimmune Epilepsy in Sept after many tests. I definitely understand “the blues” feeling. Some days are good and some I just want to stay in bed all day. And before my diagnosis the not knowing really effected me. Just take it one day at a time ( hard to do I know). Since being diagnosed I still have a hard time with “if or when will I have a seizure again”. Its very scary and if you ever want to talk you can PM too. Hope you find answers.
Amanda
I know how not being dependent mean. I had to stop driving for two years because they couldn’t figure out what was going on with me. I just got a release to drive and if felt like l just got my drivers permit. Hang in their, before l was having to have paper signed by DPS every six month since 2001 but l was able to drive even though l had to have it filed out every 6months. You can find resource for transportation from your state rehabilitions services and when l was in the hospital the social worker gave me names of all the services. And when you call them they have cab service that will pick yo u up from your house. And l also got a pass from transit it was to pay less and that might help you. I used that for awhile and then l moved and there was no buses where l lived. So you might try these resources l hope this will help. Good luck
Liked by Leonard
@robertjr
In reply to @robertjr
had number four with keppra this morning,fourth grandmal ina month ,the keppra a lot easier to get back onfeet afterwards but sofar doesnt seem to be ,stopping the seizures,having mri done today.
Liked by Dawn, Volunteer Mentor, Leonard