I am having a VERY difficult time with Klonipin withdrawal

Posted by lisalynn @lisalynn, Jun 29, 2023

I have been on Klonipin for a BIG Panic disorder for over 15 years. I recently had to wean down off of 3 to none fast. The withdrawal was the worst thing that has ever happened to me. I have my normal prescription now. However, at a lower level. But, I am still having a withdrawal symptom that is plaguing me. I am still taking it, but half of what I had been. I hear my Heart thumping in my ears, very loud and fast, 120 beats per minute. Did anyone else have that symptom? Or describe their withdrawal? Oh, and I NEVER want to speak to that new and cold Psychiatrist I have.
Struggling. Thanks.

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Hi, all - just a friendly reminder of the Mayo Clinic Connect Community Guidelines, https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/, where it indicates treating all members with respect in No. 4:

- Respect all members.
Use respectful language. Profanity, offensive language, and abusive comments are not allowed.
Treat others with respect, even when you disagree.
Disagreement is okay, but personal attacks are not. Personal attacks will be removed.

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Profile picture for gunshy @gunshy

I don't know whether this will be helpful as I have been on .5 for about seven months. It seems as if the cut they had you take was way to much for your nervous system.
Also, I am still getting ready to taper. I switched to compound capsules with a mircrocryltaline filler and now I am going very slowly to three instead of two doses a day to smooth out the uncomfortable inter dose withdrawal and plan to start my cuts at 2 percent every four weeks on a hyperbolic curve. I cannot suffer any more and though it will take a long time, to go this slow is worth it. I hope you find a plan that works for you.

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Thank you.for responding. How did you suffer at .5mg? Do you think going from 3.50 to 3.25 is too much? Scared really.

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Profile picture for briacirs @briacirs

Thank you.for responding. How did you suffer at .5mg? Do you think going from 3.50 to 3.25 is too much? Scared really.

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@briacirs
That looks like 12.5 percent. But it would be good if you did the math to double check my mine. The Ashton Manual recommends 5 to 10 percent every two to four weeks. I am opting for a four week hold. I think it depends on how sensitive your nervous system is. Mine if very and I have had a paradoxical response to the medication which meant it really never made me very calm. If yours is sensitive I would very much recommend going slower than that cut. You can always start smaller and see how you do. Better to have success with your first cut than end up feeling so awful that you might get so discouraged you do not want to continue.
The best thing is a patient lead taper as you know your body's response better than anyone else.
As for suffering, I have had the usual with inter dose withdrawal -- nausea, bladder control issues, shaking, hip pain, but everyone is different. Some people can stay on it for years and those things never bother them.
Please let me know what you decide to do and how you are doing with your tapering rate choice.

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Profile picture for laughlin1947 @laughlin1947

@kittyjohnson1964 Your interpretation about being addicted to clonazepam is short sighted. I person who can't get off a tiny, tiny dose after more than a year of trying is mentally addicted, and will never get off the drug unless put in rehab. It has nothing to do with getting high or the dose would have been increased over time and be much larger. This is a mental problem.

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@laughlin1947
Sorry, I totally disagree with this. If one takes it as exactly as ordered, it is called inter dose withdrawal as the body becomes used to to want more as the body has developed a tolerance for it. As for a detox center or a rehab, I had a friend who committed suicide after going to a 6 day detox. I looked into 30 day rehabs, and not only they are outrageous expensive and not the right thing to get off this drug only a long slow patient led tape is the safe way to go.

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Profile picture for kittyjohnson1964 @kittyjohnson1964

@fbw57
I don't like the term addiction when the medication comes from a doctor and you are not taking it to get high. Any medication that you've taken for a long time is actually but some people would say as an addiction because your body is used to it that does not mean you are an addict I do not like that terminology. I am on Klonopin and have tried other things to get off of it and then recently saw a neurologist and he said there was no reason basically for me to try and get off of it since it works for me and I have been on it for 32 years. I did try the Gabapentin with very bad side effects mental for me. So I'm happy to stay on my Klonopin for the rest of my life which is only 1.5 mg. Best of luck to you.

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@kittyjohnson1964 Good for you Kitty. People are obsessed with getting off Klonopin. If your dosage remains the same and you don’t combine it with alcohol just ignore them.
Life is too short to worry about them.

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Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, all - just a friendly reminder of the Mayo Clinic Connect Community Guidelines, https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/, where it indicates treating all members with respect in No. 4:

- Respect all members.
Use respectful language. Profanity, offensive language, and abusive comments are not allowed.
Treat others with respect, even when you disagree.
Disagreement is okay, but personal attacks are not. Personal attacks will be removed.

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@lisalucier Thanks for reminding people on this site. Everyone is different and if something works for them and they are not abusing it just stop trying to change their behavior.

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Profile picture for daveshaw @daveshaw

@kittyjohnson1964 Good for you Kitty. People are obsessed with getting off Klonopin. If your dosage remains the same and you don’t combine it with alcohol just ignore them.
Life is too short to worry about them.

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@daveshaw
I appreciate your positive feedback. And I don't ever drink alcohol and my dose has never gone up only down sometimes. Thank you!

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I appreciate the comment. My PCP has repeatedly told me to stop reading the posts regarding Klonopin on the site.
Getting off it if you don’t abuse it is only part of a study that didn’t include how insomnia is a far greater problem for many seniors and the population in general.
Sleep well Kitty.

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Profile picture for gunshy @gunshy

@laughlin1947
Sorry, I totally disagree with this. If one takes it as exactly as ordered, it is called inter dose withdrawal as the body becomes used to to want more as the body has developed a tolerance for it. As for a detox center or a rehab, I had a friend who committed suicide after going to a 6 day detox. I looked into 30 day rehabs, and not only they are outrageous expensive and not the right thing to get off this drug only a long slow patient led tape is the safe way to go.

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@gunshy
I'm sure this person's one year withdrawal plan is a truly safe way to go, but I don't see any light at the end of the tunnel. If the person cannot stop taking a very small dose of a medication within a year's time, then the answer might be to stay on it forevermore.

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