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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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@johnbishop Well, I have a bit of an answer. It’s Small Fiber Neuropathy. Still waiting to see if we can find a cause and treat that. Meanwhile I’m hoping to find resources here for nutrition and exercise and anything else I can control to help ease the fatigue and pain.
@louellenc I try to exercise daily four or five days a week for 30 to 45 minutes or so. I do think that it helps along with good nutrition. The Foundation for Peripheral Neuropathy has a good starting list if you haven't already seen it - https://www.foundationforpn.org/lifestyles/. There are also quite a few discussions on neuropathy and exercise if you want to scan through them - https://connect.mayoclinic.org/search/.
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2 ReactionsJust received this in my monthly Foundation for Peripheral Neuropathy newsletter and thought I would share it here:
July 24, 2026
Highlights from the 2026 Peripheral Nerve Society Annual Meeting
https://www.foundationforpn.org/2026-peripheral-nerve-society-meeting-research-highlights/
I have had idiopathic peripheral neuropathy for 25 years; every single day recently I tried light therapy for 6 weeks with no improvement. Now the chiropractor gave me the Rebuilder 300. . Has anyone used this with success?
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1 ReactionSo thankful for this group. Thank you, Mayo Clinic and all members.
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1 ReactionHello @bobbie78, Welcome to Connect. I don't have any experience with the Rebuilder 300 but there are several members who have shared their experience with the product. Here's a search link that lists the different member posts about the Rebuilder - https://connect.mayoclinic.org/search/.
Do you have pain with your neuropathy or is it just numbness, tingling like mine?
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2 ReactionsWelcome @fathertimothy! Happy to see that you have found Connect. Can I help you find a particular topic to connect you with other members with similar condition/symptoms?
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1 ReactionHad anyone tried the SPRINT PNS? Just wondering.
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1 Reaction@maryandnans I have seen it advertised and in a doctor's office. I would go online and do some searching.
@maryandnans here’s a search of Connect that links to members posts about Sprint PNS
https://connect.mayoclinic.org/search/
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