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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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Hi my name is Hope and I am 80. I have neuropathy, but also have no cartilage in either knee. Gabaopentin does nothing. Alene works better, but not well. It is getting worse and my feet turn red and feeling is gone , but not the pain. I can step on glass and cut my foot and not even know it. Does anyone know how to stop the pain? Do chiropractors really help? I have these bands that do pulsating shocks and found them some help. I really think back and think this started years ago, my feet felt like they were asleep. I complained and was sold orthopedic shoes. I constantly was twisting my ankle and foot it felt sprung. I would fall because it gave way. This was at least 48 years ago. I was a teacher.
@johnbishop
Yes, I have severe pain after standing on my feet for 1-2 hours while shopping….i’m a shopaholic, fortunately or unfortunately I can’t drive because of the condition. I used to say to myself,”I wish I could dance again”…. Now it’s I wish I could walk again without numbness, pain , and balance problems! Biggest concern with Neurologists is they don’t exam the patient once they hear former dx of neuropathy.
Has anyone never had such severe pain that they thought about amputating their feet, (which is totally ridiculous when your pain subsides), but what pain
medication do you use?
Bobbie78