1. < Neuropathy
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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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EllenC | @louellenc | 5 hours ago
In reply to @johnbishop "Hello Lou Ellen @louellenc, Welcome to Connect. It sounds like you've had all of the normal..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Hello Lou Ellen @louellenc, Welcome to Connect. It sounds like you've had all of the normal tests, including a skin punch biopsy but they weren't able to find a diagnosis. I'm sure you are not alone and others with similar symptoms have struggled to get a diagnosis and treatment. You might find this related discussion helpful:
-- May have undiagnosed autoimmune disease:
https://connect.mayoclinic.org/discussion/may-have-undiagnosed-auto-immune-disease/
You mentioned your neurologist couldn't find anything and thinks it's anxiety. Have you thought about getting a second opinion from a specialist like a neuromuscular neurologist?

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@johnbishop Well, I have a bit of an answer. It’s Small Fiber Neuropathy. Still waiting to see if we can find a cause and treat that. Meanwhile I’m hoping to find resources here for nutrition and exercise and anything else I can control to help ease the fatigue and pain.

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Mentor
John, Volunteer Mentor | @johnbishop | 4 hours ago
In reply to @louellenc "@johnbishop Well, I have a bit of an answer. It’s Small Fiber Neuropathy. Still waiting to..." + (show)
Profile picture for EllenC @louellenc

@johnbishop Well, I have a bit of an answer. It’s Small Fiber Neuropathy. Still waiting to see if we can find a cause and treat that. Meanwhile I’m hoping to find resources here for nutrition and exercise and anything else I can control to help ease the fatigue and pain.

Jump to this post

@louellenc I try to exercise daily four or five days a week for 30 to 45 minutes or so. I do think that it helps along with good nutrition. The Foundation for Peripheral Neuropathy has a good starting list if you haven't already seen it - https://www.foundationforpn.org/lifestyles/. There are also quite a few discussions on neuropathy and exercise if you want to scan through them - https://connect.mayoclinic.org/search/.

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