Looking for information on 41 year old Luque rods. Any info?

Posted by brendasr @brendasr, 1 day ago

I have been searching for any studies or support platforms for woman with Luque rods.
My surgery, by Dr Carr at Emanuel Hospital in 1986, was at age 13. I am now 54 and my thoracic spine is the only part that doesn't hurt. My lumbars have taken a toll over the years and now I am looking at a hip replacement. I am very active and in good shape. I need help finding research on four decades old titanium back surgery. Or a doctor I can work with.
Please send links to anything that may lead me to information.

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brendsr, I would want Lawrence Lenke. https://spinehealth.org/lawrence-lenke-md/ You really do want an experience specialist. It might not serve you well to be too far from home. If you tell us your state or city, there may be a closer recommendation.
The Luque rods are a little more complex to remove than the Harringtons.
https://www.scoliosis-australia.org/about-scoliosis/removal-of-correction-rods/
Bless your surgery with the best luck.

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Profile picture for gently @gently

brendsr, I would want Lawrence Lenke. https://spinehealth.org/lawrence-lenke-md/ You really do want an experience specialist. It might not serve you well to be too far from home. If you tell us your state or city, there may be a closer recommendation.
The Luque rods are a little more complex to remove than the Harringtons.
https://www.scoliosis-australia.org/about-scoliosis/removal-of-correction-rods/
Bless your surgery with the best luck.

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@gently
I don't want my rods removed. They are wonderfull. But with (what I call) cement & rebar holding my entire thoracic spine stiff, my lumbar and sacral, therefore my pelvis, has become "disfunctional" over my perimenopause phase. With a year's old left hamstring injury, a year's old ACL repair, and a newer right hamstring injury, I am now looking at a right hip replacement. These injuries were from thinking I was younger than I was while running/jumping. I hope this gives more clarity! I am in Springfield, Oregon.

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I believe I have Luque rods. In 1986 I had a horse riding accident in which I crushed L1. My surgeon, Dr. Van Peteghem installed the rods in Vancouver, Canada. Sadly these rods failed and I had further surgery in 1991, when Harrington rods were placed into my spine. The Luque rods are made of Titanium and this means the body attaches to the rods and grows around them. I was told that they cannot be removed.

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Profile picture for brendasr @brendasr

@gently
I don't want my rods removed. They are wonderfull. But with (what I call) cement & rebar holding my entire thoracic spine stiff, my lumbar and sacral, therefore my pelvis, has become "disfunctional" over my perimenopause phase. With a year's old left hamstring injury, a year's old ACL repair, and a newer right hamstring injury, I am now looking at a right hip replacement. These injuries were from thinking I was younger than I was while running/jumping. I hope this gives more clarity! I am in Springfield, Oregon.

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@brendasr
I misunderstood, but I think you were clear enough. I'm glad because this is much easier on your body. I'm wanting to know how thrilled you must have been 40 years ago. Latham is in England but you might watch his video https://www.youtube.com/watch

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Profile picture for Sophie46 @sophie46

I believe I have Luque rods. In 1986 I had a horse riding accident in which I crushed L1. My surgeon, Dr. Van Peteghem installed the rods in Vancouver, Canada. Sadly these rods failed and I had further surgery in 1991, when Harrington rods were placed into my spine. The Luque rods are made of Titanium and this means the body attaches to the rods and grows around them. I was told that they cannot be removed.

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@sophie46,
Correct. They are a part of me until I am gone! They have kept me upright and I am so glad they were what my doctors decided to use.

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Profile picture for gently @gently

@brendasr
I misunderstood, but I think you were clear enough. I'm glad because this is much easier on your body. I'm wanting to know how thrilled you must have been 40 years ago. Latham is in England but you might watch his video https://www.youtube.com/watch

Jump to this post

@gently, I tell people I went through one growth spurt. It was when I was 12 and it was sideways! A paternal aunt and a paternal first cousin both have scoliosis. But mine twisted and curved anteriorly. Dr. Carr told my partents if I didn't have the surgery I would be dead by the time I was 40. So I, as a 12 year old, said "sign me up!" My dad wanted yet another opinion. By that time I had seen the middle school PE teacher, the middle school nurse, my pediatrian and a local orthopedic doctor that sent me to Dr. Carr. I spent two weeks recovering in the hospital and two weeks flat on the couch at home. I (nor my best friend) remember me doing ANY physical therapy. Thankfully I have always been very OCD on my physical mobility. I am an LMT and work at a physical therapy office.

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Profile picture for gently @gently

@brendasr
I misunderstood, but I think you were clear enough. I'm glad because this is much easier on your body. I'm wanting to know how thrilled you must have been 40 years ago. Latham is in England but you might watch his video https://www.youtube.com/watch

Jump to this post

@gently I need a plane ticket to go see Dr. Latham. He is exactly who I need. (JK. not buying a plane ticket!)

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