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Anybody diagnosed with microscopic colitis?
Hi, wondering if anybody here has this for a dx. I have been having a flare for about two months, it is getting a little better with the meds but the doctor wants me to go on a short dose of steriods. I already have a muscle disease so hate to go the steriod route, (plus do not need to gain weight) lol. But if anyone has any hints for me I would appreciate it on how to control this. It is the longest flare I have had.
Susie
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@volleyballfan
I have microscopic colitis - when I was diagnosed about 7-8 years ago, I was started on 3 tabs budesonide in the morning. I am now taking one each morning. I've also been on the special diet and take Metamucil in the morning. I usually have one bowel movement in the morning. You DO NOT have to suffer.
FIND ANOTHER GASTROENTEROLOGIST WHO KNOWS HOW TO TREAT MICROSCOPIC COLITIS!.
Thank you. What’s kind of diet are you on?
@gengwen Are you referring to when you are in remission?
I would not say I'm in remission as I take medication and use the formal diet to control the symptoms - loose, frequent stools. I generally have one (or two small) stools each morning.
If it were me, that would be a sign of being in remission.
@ndough
I agree - 2 stools per day is great for people with MC! What kind of diet are you on? I take colestipol (tablet substitute for cholestyramine) twice a day, take fiber supplement three times a day and avoid caffeine, dairy and raw vegetables. My stools have bulked up and mostly in the morning. Still some urgency. This is so helpful to hear from other people who suffer with MC! TY!