Anybody diagnosed with microscopic colitis?

@volleyballfan

I have microscopic colitis - when I was diagnosed about 7-8 years ago, I was started on 3 tabs budesonide in the morning. I am now taking one each morning. I've also been on the special diet and take Metamucil in the morning. I usually have one bowel movement in the morning. You DO NOT have to suffer.
FIND ANOTHER GASTROENTEROLOGIST WHO KNOWS HOW TO TREAT MICROSCOPIC COLITIS!.

Thank you. What’s kind of diet are you on?

@gengwen Are you referring to when you are in remission?

I would not say I'm in remission as I take medication and use the formal diet to control the symptoms - loose, frequent stools. I generally have one (or two small) stools each morning.

If it were me, that would be a sign of being in remission.

@ndough
I agree - 2 stools per day is great for people with MC! What kind of diet are you on? I take colestipol (tablet substitute for cholestyramine) twice a day, take fiber supplement three times a day and avoid caffeine, dairy and raw vegetables. My stools have bulked up and mostly in the morning. Still some urgency. This is so helpful to hear from other people who suffer with MC! TY!

I have had chronic diarrhea and fecal inconvenience for about 2.5 years, since weaning off Budesonide after 15 years. I am serious, most days of the week was hugging the toilet the past 2.5 years! I changed GI's a few months ago. He told me if I dont want to get back on Budesonide and I have the interstem implant (that doesn't work for me either) he couldn't think of anything else. His advice was to take up to 6 Imodium tablets as needed 30 minutes before a meal and take Citricel. He then handed me a box of tissues. I am sure you can guess why. Miraculously, I think it just might be working!

Budesonside has many side effects. The last straw was when my bone density test results came back. My GI didn't wean me off long enough. What took 1.5 months, shiukd have taken 6 months afterc15 years and I went into adrenal crisis and almost died. I could barely make it to my cell phone to call 911 for the first in my life. I kept collapsing every 2 ft, crawling on the floor to my cell phone. I had had diarrhea and vomiting for a solid 3 hours and my body started shaking uncontrollably. I have never been that weak in my entire life! I was actually dressed to go skiing that morning! Told my husband to go skiing without me, that I must have a stomach bug. Had no idea it was because I had depleted all the cortisol from my body. Your adrenal glands stop making it when Budesonide takes it over. When I stopped the Budesonide, I then had NO cortisol and my body went into crisis mode. I had no idea that Budesonide suppresses your natural source of cortisol from those important 2 tiny glands that sit on your kidneys!