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Anybody diagnosed with microscopic colitis?
Inflammatory Bowel Disease (IBD) | Last Active: 1 day ago | Replies (447)Comment receiving replies
@donnagail I think I will try your Immodium and Citricel (or Metamucil) trick! Probably what is helping is the Psyllium husk. I’ve read other articles about it helping not just constipation but diarrhea too. I’ve had MC for more than 35 years. There is absolutely no way I will take Budesonide - in X-rays my bones look like lace. You can see through them. When I was younger (teens, 20’s) I was a dancer & any injury you suffer, the company doc just injects it with a steroid. I had that done so many times that my first bone density test (at 50) looked like a test of someone at 80. While Budesonide is a much milder steroid, nope. The half life of steroids is more than your lifespan.
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@ndough Yes, aside from Citricell, Metamucel, phyllism husky all do the same thing.
There is so little research being done for MC because they dont think enough people have it or the pharmaceutical company that makes Budesonide is making a killing. In the past 8 months, chronic diarrhea caused 3 UTI'S in which taking a broad spectrum antibiotic caused C-Diff for 2 months. My system has been so compromised, a month ago I was dealing with E-Coli and Noravirus. No clue how I contracted either. I went to AI and said I wanted to go extreme to starve off the bad bacteria that has taken over my gut, and I probably have SIBO in my small intestines. AI suggested the Elemental Diet, a very challenging liquid diet for 2 weeks or 3 weeks if I do have SIBO. I bought a couple powder samples that just came in. I plan to drink one today and tomorrow to see if I can get them down. AI has TONS of information on how to do it. I am trying to find a telehealth registered dietician to guide me through it. I have to do something to get my microbiome balanced. It is going to be HARD! Pro and prebiotics as well as the paleo diet werent doing it. I do think the pale diet will be best once I have good bacteria taking my gut back. I did my own testing for gluten intolerance and casin and I have a high intolerance for both which is the case with most MC patients.
Please let me know how you are doing.