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I have had chronic diarrhea and fecal inconvenience for about 2.5 years, since weaning off Budesonide after 15 years. I am serious, most days of the week was hugging the toilet the past 2.5 years! I changed GI's a few months ago. He told me if I dont want to get back on Budesonide and I have the interstem implant (that doesn't work for me either) he couldn't think of anything else. His advice was to take up to 6 Imodium tablets as needed 30 minutes before a meal and take Citricel. He then handed me a box of tissues. I am sure you can guess why. Miraculously, I think it just might be working!

Budesonside has many side effects. The last straw was when my bone density test results came back. My GI didn't wean me off long enough. What took 1.5 months, shiukd have taken 6 months afterc15 years and I went into adrenal crisis and almost died. I could barely make it to my cell phone to call 911 for the first in my life. I kept collapsing every 2 ft, crawling on the floor to my cell phone. I had had diarrhea and vomiting for a solid 3 hours and my body started shaking uncontrollably. I have never been that weak in my entire life! I was actually dressed to go skiing that morning! Told my husband to go skiing without me, that I must have a stomach bug. Had no idea it was because I had depleted all the cortisol from my body. Your adrenal glands stop making it when Budesonide takes it over. When I stopped the Budesonide, I then had NO cortisol and my body went into crisis mode. I had no idea that Budesonide suppresses your natural source of cortisol from those important 2 tiny glands that sit on your kidneys!

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Replies to "I have had chronic diarrhea and fecal inconvenience for about 2.5 years, since weaning off Budesonide..."

@donnagail I think I will try your Immodium and Citricel (or Metamucil) trick! Probably what is helping is the Psyllium husk. I’ve read other articles about it helping not just constipation but diarrhea too. I’ve had MC for more than 35 years. There is absolutely no way I will take Budesonide - in X-rays my bones look like lace. You can see through them. When I was younger (teens, 20’s) I was a dancer & any injury you suffer, the company doc just injects it with a steroid. I had that done so many times that my first bone density test (at 50) looked like a test of someone at 80. While Budesonide is a much milder steroid, nope. The half life of steroids is more than your lifespan.