Why do I have dangerously low and dangerously high blood pressure?

@colleenyoung Thank you for moving my question to the most appropriate group

I am looking for expert advice; however, being a retiree on Medicare, I may have to get a referral from my family doctor. I just need to know whom to ask my doctor to refer me to. I’m about 6 hours away from Jacksonville, but to get help, I would deal with that.

My perception of dangerously high/low are numbers such as 163/109 and 90/65. I experience numbers like these if I don’t discipline myself very strictly regarding how long I rest or how long I work, balanced with High BP meds. Such discipline becomes harder when the weather is unfavorable, when we are traveling, or involved in something that just doesn’t allow it. High blood pressure is fairly easy to drop in a short period of time, such as a brief half-mile walk or 30 minutes of hard work. However, the low blood pressure is harder to get back up. It can take a couple of hours of rest unless I do something like eat something really salty. The above numbers are an example of what I experienced during the recent storm 2 or 3 times. The high BP was after about 3 hours of reading one cold morning, followed by the low after going outside and manually wire-brushing over and painting a utility trailer. That took about an hour at the pace I worked. If I feel symptoms as I do with such numbers as those above, I use a home monitor to check my BP. Other than that, I just pace myself as best I can. Symptoms that prompt me to check it are a burning sensation to my face or ears, an increase in my tinnitus @a higher ringing sound than normal, or a headache. These “almost” always proved to be high BP. Other symptoms that prompt me are dizziness or seeing spots in my eyesight, which have always proved to be low BP.

I am having the same issues for several years and after multiple cardiac and non-cardiac testings to determine the root cause, I am having symptoms that presents like Orthostatic Hypotension and straight up Hypertension. To that end, I am bouncing from one specialist to another trying to determine what is the cause of my issues and most importantly, what needs to be done to make me feel better despite what the labs and test results may be showing! Right now, I feel the same symptoms described to start this chat and they are happening more frequently and lasting longer throughout the day as I get older ( I am 65). This condition is limiting my ability to do relatively light chores around the house, exercise, play a round of golf, etc. Right now I am being treated with Midodrine and Amlodipine depending on whether my BP is low or high. Feels like a game of Russian roulette. I have exhausted all relevant cardiac testing and all possible cardiac issues have been ruled out, so I am now being referred to Neurology and Endocrinology to provide their insights