ICD shifting?

Posted by kayparker @kayparker, Jun 8 10:41am

Any insight with anyone if your device will shift causing pain? Implant was last month. I have felt a hard lump at the curve of my armpit 3 times now. Before I read anything how not to do it, I gently massaged the affect area until the pain subsided and the area was soft again. I'm calling my Dr office today to get some clarification but would appreciate others experiences.

Interested in more discussions like this? Go to the Pacemaker & ICDs Support Group.

Yes, I pointed this out to him last week. I am a small lady so the wires are ok. I assume they will fix this uncomfortable issue when the generator is replaced. I posted here because I am proof that the generators can shift.

REPLY
Profile picture for deniseheart @deniseheart

Yes, I pointed this out to him last week. I am a small lady so the wires are ok. I assume they will fix this uncomfortable issue when the generator is replaced. I posted here because I am proof that the generators can shift.

Jump to this post

@deniseheart
Oh yea the can shift. I had a surgery on heart to put in a direct wire to heart for my pacemaker as the one in vein had come out.

The surgeon, not a EP, had to take ICD/Pacemaker out to connect new wire. He did not set up the pocket for my device (mine is under my chest muscle).

Once I healed I noticed the device moving drastically when I made certain movements. This was never the case before the surgery. I had a new device implanted years later and it was correctly put into a pocket type holder.

With the old one I could press my hands together and the device would more 6 inches.

REPLY
Profile picture for greg1951 @greg1951

I have had my ICD for about 3 1/2 years now. I had some slight movement with it the first few months but it pretty much stayed where it was implanted. It has stabilized since then and firmly in place in my upper left chest about 3-4" below my collar bone and the same distance over from my arm pit. It was uncomfortable the first several months and quite pronounced visually. That has settled down since then and isn't nearly as noticeable as it used to be.

Jump to this post

@greg1951
Hello, I am new here. I had a ICD implanted in May and it is uncomfortable and pronounced where I can see one of the wires. I saw my doctor and he said to give it time as he does not want to go back in. After reading what you wrote it made me feel a little more comfortable about my situation.

REPLY
Profile picture for ezra03 @ezra03

@greg1951
Hello, I am new here. I had a ICD implanted in May and it is uncomfortable and pronounced where I can see one of the wires. I saw my doctor and he said to give it time as he does not want to go back in. After reading what you wrote it made me feel a little more comfortable about my situation.

Jump to this post

@ezra03
I have had a ICD/Pacemaker since 2006. I have 3 replacement surgeries since them.

My Electrophysiologist (EP) said it takes about a year for the device to be encapsulated by body. That include the wires. So think going to get better which body encapsulate it.

I assume from you post your device was put under your skin with wires doing down to your heart. Mine was put under my chest muscle as per my EP my skin was too thin for under skin placement.

With under the skin placement you will notice it more than under muscle. But it takes time to encapsulate and getting seated. You need to follow your doctors directions on limiting movements. Give it time. Make sure you recognized anything that irritates the area or causing it to move.

Even today 8 years after my last device I do not lift my left arm above my head. It irritates the area around my device and can feel a slight movement. So learn to refrain from movements that irritate it or move it and never press on the area.

I will be having my 4 device surgery in less that a year. Millions have the devices and some have pronounced areas under the skin but just remember when you see that know that you have your own EMS there to help you when needed. It is your own 911 system.

REPLY
Profile picture for ezra03 @ezra03

@greg1951
Hello, I am new here. I had a ICD implanted in May and it is uncomfortable and pronounced where I can see one of the wires. I saw my doctor and he said to give it time as he does not want to go back in. After reading what you wrote it made me feel a little more comfortable about my situation.

Jump to this post

@ezra03 Welcome to the discussion on ICD here on Connect! It does takes time for your body to fully adjust to this new device, which is essentially your personal EMT accompanying you 24/7, as @jc76 describes it. Glad he made you feel a little more comfortable. Buddy (Yes, I named it), was installed in late 2022 between my heart and collarbone. I had developed electrical problems after a septal myectomy which included dizziness, giddiness and syncope, eliminated by Buddy. The device does "stick out" a bit. I cannot see any wires, maybe as the scar tissue develops your wires will be less noticeable? Here on Connect, we encourage everyone to learn as much as they can about their medical issues. You may find it helpful and informative to read Mayo's information on ICDs: https://www.mayoclinic.org/tests-procedures/implantable-cardioverter-defibrillators/about/pac-20384692. People sometimes seek a second opinion, not necessarily because they do not fully trust their doctors, but to help obtain peace of mind. How was it determined that you would benefit from having an ICD? There are an unbelievable number of heart conditions that benefit from pacemakers and ICDs, were you diagnosed with a specific ailment?

REPLY
Profile picture for jc76 @jc76

@ezra03
I have had a ICD/Pacemaker since 2006. I have 3 replacement surgeries since them.

My Electrophysiologist (EP) said it takes about a year for the device to be encapsulated by body. That include the wires. So think going to get better which body encapsulate it.

I assume from you post your device was put under your skin with wires doing down to your heart. Mine was put under my chest muscle as per my EP my skin was too thin for under skin placement.

With under the skin placement you will notice it more than under muscle. But it takes time to encapsulate and getting seated. You need to follow your doctors directions on limiting movements. Give it time. Make sure you recognized anything that irritates the area or causing it to move.

Even today 8 years after my last device I do not lift my left arm above my head. It irritates the area around my device and can feel a slight movement. So learn to refrain from movements that irritate it or move it and never press on the area.

I will be having my 4 device surgery in less that a year. Millions have the devices and some have pronounced areas under the skin but just remember when you see that know that you have your own EMS there to help you when needed. It is your own 911 system.

Jump to this post

@jc76
Thank you so much! I appreciate your recommendations.This has been very emotional for me and I am so thankful to be here. I am just trying to accept my new normal.

REPLY
Profile picture for Linda, Volunteer Mentor @walkinggirl

@ezra03 Welcome to the discussion on ICD here on Connect! It does takes time for your body to fully adjust to this new device, which is essentially your personal EMT accompanying you 24/7, as @jc76 describes it. Glad he made you feel a little more comfortable. Buddy (Yes, I named it), was installed in late 2022 between my heart and collarbone. I had developed electrical problems after a septal myectomy which included dizziness, giddiness and syncope, eliminated by Buddy. The device does "stick out" a bit. I cannot see any wires, maybe as the scar tissue develops your wires will be less noticeable? Here on Connect, we encourage everyone to learn as much as they can about their medical issues. You may find it helpful and informative to read Mayo's information on ICDs: https://www.mayoclinic.org/tests-procedures/implantable-cardioverter-defibrillators/about/pac-20384692. People sometimes seek a second opinion, not necessarily because they do not fully trust their doctors, but to help obtain peace of mind. How was it determined that you would benefit from having an ICD? There are an unbelievable number of heart conditions that benefit from pacemakers and ICDs, were you diagnosed with a specific ailment?

Jump to this post

@walkinggirl

Hello, I went into VT at home and was taken to the ED. I already had a EP doctor due to having a history of SVT. I was told that I needed the ICD. Pretty scary experience.

REPLY
Please sign in or register to post a reply.