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Dr. wants me to get Xolair for allergies/bronchial asthma. Terrified.

Posted by dubln @dubln, May 4, 2025

I am 69 severe nasal allergies that go into bronchial asthma moderate asthma on asthma med nasal sprays nette rinse live in ct climate change past couple of years has caused my allergies to get worse
Allergy dr past years wants me to take xolair shots
I am terrified to do this because of the epi pen being alone a lot having a event and not being able to use pen correctly or in time I also have severe anxiety
My pulmonary dr knows how I feel about this will offer any other alternative told me quote just keep epi pen near you if you can breathe just give yourself a shot that scared me even more please please any suggestions

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Moderator
Lisa Lucier, Moderator | @lisalucier | 2 days ago
In reply to @standinginfaith "Has anyone tried the Xolair shot..?? My allergist says I have CSU Chronis Spontaneous Urticaria and..." + (show)
Profile picture for standinginfaith @standinginfaith

Has anyone tried the Xolair shot..?? My allergist says I have CSU Chronis Spontaneous Urticaria and I got my 1st shot Thursday..(I'm 72 and have really been sick for 6 1/2 years.. long story) .. but now almost anything sets off hiving and I get sick..and it's so bad lately I've been in bed since my 1st visit to her May 6 and she said "you're not allergic to anything.. eat what ever you want and if it bother you , wait 2 weeks and try again.. so I did.. and then had 3 different treatments for a BV (female infection) took 5 flagyls and so sick had to stop , 1 boric acid suppository and my tongue swelled up so bad I couldn't talk and 5 of 7 days of another antibiotic and had to stop.. and then food poisoning from pear juice.. which has had me pretty much in bed in agony since I say here ..been out 7 times since May6 and had to cancel other dr appts.. so I didn't know what to expect with this shot .. but its not so good so far.. anyone else had a Xolair shot..?? I'd really appreciate some feed back.. so afraid to eat of drink anything but water now..applesauce is ok..

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Hi, @standinginfaith - I moved your post here so you could join others talking about omalizumab (Xolair) on Connect:

- Dr. wants me to get Xolair for allergies/bronchial asthma. Terrified. https://connect.mayoclinic.org/discussion/dr-wants-me-to-get-omalizumab-xolair-for-allergiesbronchial-asthma/

This will help more Connect members see your question and invite responses from people with experience with this medication who may be able to help and let you know what to expect. Fellow members such as @dubln @arthur2677 @covidstinks2023 and others may have ideas on this from their experiences. @sueinmn also may have thoughts for you.

If you are replying by email, click on VIEW & REPLY so that you will be brought to the new discussion. I suggest reading through and jumping in where you feel comfortable.

What is your doctor saying about what you are experiencing so far with this shot, standinginfaith?

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standinginfaith | @standinginfaith | 1 day ago
In reply to @lisalucier "Hi, @standinginfaith - I moved your post here so you could join others talking about omalizumab..." + (show)
Profile picture for Lisa Lucier, Moderator @lisalucier

Hi, @standinginfaith - I moved your post here so you could join others talking about omalizumab (Xolair) on Connect:

- Dr. wants me to get Xolair for allergies/bronchial asthma. Terrified. https://connect.mayoclinic.org/discussion/dr-wants-me-to-get-omalizumab-xolair-for-allergiesbronchial-asthma/

This will help more Connect members see your question and invite responses from people with experience with this medication who may be able to help and let you know what to expect. Fellow members such as @dubln @arthur2677 @covidstinks2023 and others may have ideas on this from their experiences. @sueinmn also may have thoughts for you.

If you are replying by email, click on VIEW & REPLY so that you will be brought to the new discussion. I suggest reading through and jumping in where you feel comfortable.

What is your doctor saying about what you are experiencing so far with this shot, standinginfaith?

Jump to this post

@llucier Thank you so much for moving me!! To tell you the truth.. my allergist just sent me away after the shot with instructions "to keep your epi pen close".. my boyfriend asked if anyone had had to use theirs that they knew about.. and the nurse said no...he asked twice and very pointedly.. well I made the mistake of getting off my promethazine 2 doses that night and it's been horrible ever since..( she did say you can take your regular meds.. but I don't take promethazine all the time..just since May ..when I say the allergist the 1st time May 6thand she said "you're not allergic to anything.. just eat anything you want and if it bothers you , stop and try it again in 2 weeks".. so I had to take an antibiotic I could usually take and went thur 3 weeks of trying different ones and reacting..I have been out of the house 7 times since May 6th and cancelling other dr appts.. so I haven't even called the allergist back..(it was such a mess just getting the shot approevd).. now everything I eat is making me sick.. so the 1st night at about 7 PM I started sneezing.. and then eyes watering and then chest pains and faint (BP ok) at about 1 AM..the next day I felt like I was run over by a truck.. whole body pain.. now it's the following Tuesday and everything I eat except applesauce makes me ill.. nauseated (8mg dissolving Zofran doesn't put a dent in it) and severe abdominal cramps.. I feel like I have something stuck in my right eye and chest hurts sometime..dizzy.. but..I did not know what to expect.. no anaphylactic reaction yet..just miserable..(most of my hives are "internal" ..systemic I guess) anyway praying alot!! And still standing in faith for healing!! You're such a wonderful monitor.. so nice and so kind.. I really appreciate you and this forum!!

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