Connect
A new challenge
Hi Everyone,
My team found a separate issue on my post lobectomy scan from last week. It says there is a 4.1-4.2 dilated area on my ascending aorta. I am scheduled for an MRA/MRI with and w/o contrast. Depending on results, I will most likely visit with a surgeon. If nothing else to get acquainted, which I am hoping for, to meet and have a watch situation.
I don’t feel ready, I’m not fully recovered from my lobectomy.
This just feels so unreal…. Same way I felt with my cancer diagnosis, so I know my mind will indeed wrap itself around this too.
I’ve been so very scared, still have moments but I am doing my best at trying to look at this with less fear now.
When I find myself beginning to get upset I try to remind myself it’s a huge positive just to be aware I have this, that I will get a clearer picture of what is going on soon… that I will cross whatever bridge when we have details.
Meanwhile I’m doing everything my cardiologist said to do/not to do. I’m on a beta blocker now. I’ve done research online, some helpful some increased anxiety as I learned this particular location of dilated/aneurism surgery is done by open heart surgery. Yikes.
I see there is an aorta connect area here too at mayo, I peeked but I’m not ready to dive in…. I will know when I am ready. I’m so very grateful to have found it and grateful for you all here too.
Positive thoughts, prayers… happy thoughts are appreciated. Thanks
Like
Helpful
HugInterested in more discussions like this? Go to the Lung Cancer Support Group.
Connect
@hch559
Hello Helen,
Thank you for your kind words. I’m glad !
I’m also glad your cancer was found early, yes, surgery is the best choice I feel as well for you.
I’m so sorry, surgery is difficult enough and then be allergic to the bond, sounds just awful. Wow, and 5 months is so very long to be patient with healing.
I’m sorry you are going through this cancer, your CT is soon, positive thoughts it has not grown, it’s scary not knowing like you said how many more may appear. I get that.
What helps me when I catch myself with a scary thought, I say I’ll cross that bridge when and even if I have too. This settles the anxiety for me… it takes a few breaths but the fear passes.
Positive thoughts are coming your way Helen
Daisy 🤗
-
Like -
Helpful -
Hug
3 ReactionsTwo health issues at the same time isn't a good situation for anyone. I went through this last summer. I pray that all will work through for you in a positive way. Remember that even with excellent doctors and medical care, you still have the option to put off major decisions for a few days or a week to consider everything. It is your body and your choice.
-
Like -
Helpful -
Hug
7 ReactionsHello @lycisca,
I’m so sorry you went through this last summer, must have been very difficult.
Thank you very much for your thoughts and prayers.
I’m praying for the same, things working out in a positive way.
And Yes, very true, thank you for that important reminder.
Hoping you are feeling well, that last summer’s health difficulties have improved for you.
🤗 Daisy
-
Like -
Helpful -
Hug
2 Reactions@daisydays Thank you for your concern. To answer your questions, I've had ros-1 lung cancer for over 6 years now, and I'm happy to say that as of my last CT scan it's still in remission although I need to continue oral chemo as long as it stays that way. Last summer when the scan showed something in my right shoulder both my oncologist and I thought it was the ros-1 metastasizing. We were both wrong--the biopsy showed it to be something called a giant cell tumor. We agreed that due to my immunity being compromised, my age and health, surgery was not an option. She put me on a second oral chemo, which I am still taking. A recent CT showed the tumor is there, but no larger than before. So here I am stuck with two chemos and their side effects until something changes. Please let us know the results of your medical visits and how things go. You'll be in my prayers.
Lycisca