Anyone else on Daraxonrasib (RMC-6236)?

Posted by howleegirl @howleegirl, May 8 5:59am

Waiting for the approval for my husband to start daraxonrasib. (the new and exciting drug just fast tracked by the FDA) Doc says he's a great candidate for this drug. Anyone else on this? I know about the awful rash you get from seeing the senator on TV. Doc has also styopped all treatment since April 11th. THAT kinda scares me?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

mcoviello | @mcoviello | Jul 14 4:02pm

In reply to @tomrennie "@mcoviello Did the doctor provide you with any suggestions?" + (show)

@tomrennie we spoke with the nurse, and she said to continue with the Lomotil and Imodium. Her symptoms were much improved yesterday and today. We have an appointment on Thursday and hope to hear if there is anything further we can do.

Turkey, Volunteer Mentor | @tomrennie | Jul 14 8:43pm

In reply to @mcoviello "@tomrennie we spoke with the nurse, and she said to continue with the Lomotil and Imodium...." + (show)

@mcoviello That is awesome that her symptoms are much improved. Imodium helps me with my pancreatic cancer and chemo. Good luck with everything on Thursday. Please keep us posted?

Colleen Young, Connect Director | @colleenyoung | Jul 18 3:50pm

In reply to @hofhope "Thank you all for your discussions and helpful suggestions here. My fiancé was diagnosed with stage..." + (show)

@hofhope, how is your husband doing? Have they managed to get his ascites and pain under control? Is he also in the care of a palliative care physician for pain management and symptom management care?

199 | @199 | Jul 19 12:16pm

In reply to @scullen53 "My brother has stage 4 pancreatic cancer, he has asked his MD about Daraxonrasib after it..." + (show)

@scullen53
from my understanding, the oncologist needs to be approved then the patient needs to be approved by Revolution Medicine.

caldy53 | @caldy53 | Jul 25 9:14pm

In reply to @owlladycpl "My daughter has pancreatic cancer and has had the #2 chemo but it didn't help. Now..." + (show)

@owlladycpl I’ve heard it will be FDA approved soon

mcoplien | @mcoplien | Jul 26 8:53am

In reply to @strongone21 "@mcoplien try to explore nearby states as that will give you the best possibility." + (show)

@strongone21 We were called Friday by our cancer center's Research Team. First step is to sign the consent. Will do that on Monday. Hoping to start Daraxonrasib next week!!!!

ljojimo | @ljojimo | Jul 26 2:43pm

In reply to @mcoplien "@strongone21 We were called Friday by our cancer center's Research Team. First step is to sign..." + (show)

@mcoplien Hi there, do you have any more information on the FDA approval coming soon? What was your source? Thanks very much for any additional details.

Turkey, Volunteer Mentor | @tomrennie | Jul 26 6:39pm

In reply to @caldy53 "@owlladycpl I’ve heard it will be FDA approved soon" + (show)

@caldy53 Hi and welcome to Mayo Connect. You seem to be following the progress of Daraxonrasib's FDA approval. Are you a candidate for it if it is approved?

Turkey, Volunteer Mentor | @tomrennie | Jul 26 6:41pm

In reply to @mcoplien "@strongone21 We were called Friday by our cancer center's Research Team. First step is to sign..." + (show)

@mcoplien Good luck with your consent form and moving the process along. Please let us know how things go next week? Thanks.

mcoplien | @mcoplien | Jul 27 2:17pm

In reply to @ljojimo "@mcoplien Hi there, do you have any more information on the FDA approval coming soon? What..." + (show)

@ljojimo
We are in Madison WI, Mike is followed by the Carbone Cancer Center. We were only contacted last Friday. They emailed us the informed consent which we went over with them today. They said Daraxonrasib is in the process of being approved by the FDA, this is according to the Gastrointestinal Research Team at the UW Hospital in Madison. Noelle LoConte is the head physician. FYI - Mike still has to be screened (blood tests and medical history review) to make sure he is a candidate for the extended access program. That will probably take a week... then they order the medication which they told us today, this could take 2-3 weeks to get once it is ordered. Quite the waiting game.