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Anyone else on Daraxonrasib (RMC-6236)?
Pancreatic Cancer | Last Active: 1 day ago | Replies (66)Comment receiving replies
@ljojimo
We are in Madison WI, Mike is followed by the Carbone Cancer Center. We were only contacted last Friday. They emailed us the informed consent which we went over with them today. They said Daraxonrasib is in the process of being approved by the FDA, this is according to the Gastrointestinal Research Team at the UW Hospital in Madison. Noelle LoConte is the head physician. FYI - Mike still has to be screened (blood tests and medical history review) to make sure he is a candidate for the extended access program. That will probably take a week... then they order the medication which they told us today, this could take 2-3 weeks to get once it is ordered. Quite the waiting game.
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@mcoplien My wife Trudi receives treatments at Mass General Hospital. She has been through both main chemo lines that now are no longer effective. She has been accepted for early access to daraxonrasib, but the start date to receive the pill is not secure. It depends on Rev Med delivering them to the queue of Mass General patients waiting for the pills to arrive. She has received from her oncologist the various medications to deal with the most common side effects, particularly rash and diarreah. (sp?). Meanwhile, her cancer marker continues to rise. It certainly is a waiting game. Thanks for getting back to me, and good luck with Mike's treatment.