Living with Neuropathy - Welcome to the group

Hi I’m Kat and I suffer with nerve damage my right shoulder arm hand and leg after been assaulted at work I’m
Left in constant pain and no friends

Thanks Heisenberg. Last night was my first with a CBD/THC gummy and it worked great!
I slept THROUGH my neuropathy pain. I'm sold. The gummy in combination with 5% Lidocaine appears to be a great solution to, at least, my current problem.

@lalper yes I have used the red light therapy. It has worked very well for me. I can sleep through the night with very little pain.

@kekimmel Hi. Can you elaborate? Is it far red, near red, or? And what is the name of your device? Thanks so much.

I've had a number of trauma injuries over 45 years of life which have resulted in some significant nerve damage. Although I've seen many Specialist there has been no specific type of neuropathy diagnosis, although most is peripheral, because there's always been more pressing issues to contend with which steers Investigations in other directions.

I had a spinal injury 25 years ago and fractured 3 vertebrae after a fall on a working holiday in England. At the time although I knew I'd hurt myself I continued to backpack with a 25 kilo backpack around Europe. Hindsights a great thing but when we're young we believe we're infallable. A spinal fusion followed 6mths after I returned home. I suffered nerve damage and I've had 3 dorsal Column stimulators implanted over 20 years to help with nerve pain.
I've had a number of other injuries which resulted in ongoing nerve problems. I broke both ankles (at different times) which were pinned and put in casts. The plaster had to removed with both due to severe nerve pain affecting the external parts of my ankle. I couldn't stand to have anything touch my ankle for at least 6 mths, no shoes, no sheet/blanket and at times even having my foot in water whether it be the shower, bath, pool was excruciating. Lots of desensitisation work to help my alter my bodies response to stimulus of any sort.
I had severe type 2 diabetes for which I was on insulin for over 5 years. I'm happy to say this is now controlled through diet and lifestyle change and I no longer have any medications to treat this.
I have moderate degeneration of thoracic and cervical spine with neuralgia affecting my strength and body's response (over sensitive or sometimes lack of sensation) to stimuli.
I also have a Chiari Malformation which was diagnosed after a head injury. I stood up and became dizzy, fell and was knocked out on the TV cabinet on the way down. It's believed the impact forced my brain through my skull and into my Spinal canal. A previous cranial CT before the accident did not show a Chiari which is how this reasoning was attained. In addition to Chiari it is suspected I have Syringomyelia (Syrinx or cysts on the spinal canal) which affects my strength and alters many sensations sometimes causing intense pain other times resulting in paralysis. The Syrinx if not treated appropriately may continue to cause irreversible damage. Because of my dorsal column stimulator I have been unable to have MRI scans which has meant some diagnosis can not be ascertained. The decision has been reached to remove the device so MRI's can be taken which will happen in the next couple of weeks. I will then fly interstate in Australia to have decompression surgery and possible fusion of cervical spine. They will also decide how to treat the Syrinx. I have facial neuropathy which results in severe facial pain that brings me to the ground it is so severe. In combination with pain I have paralysis in my face, again my face responds in different ways to stimuli.

My team of specialists are somewhat baffled by the complexity of my conditions but they are slowly being able to bring it a together and gain a better understanding of what's going on and why. That's it in a nutshell, there's more to it but these are the basics. Hope this gives a bit of insight

@sallymagint . I have seen several
Neurologist, with no help, one did all kind of test including Lupus and several other, nerve conductivity and the only thing he found it was a low vitamin B1, it has progressed beyond my knees on his way up, severe numbness and burning sensation the burning is accompanied with a burning in my anus and felling desires of defecating, been through two back interventions one laminectomy L4, L5 and the second a lumbar sinovial cyst on the vertebrae none of them was successful.
I thing this may have caused a augmented the neuropathy.
It was progressing at slower rate however cancer in my prostate was found, I was place on Orgovix and amidiorone for AFIB, this medication have exponential aggravated the neuropathy that I believe is an Autonomic Neuropathy although none of the neurologist have diagnosis, as a fact most of medical personnel don’t believe me, the slightest change of temperature will make my legs cold and the pain starts.
I’m doing radiation when I finish in one month I will try to come back and address the neuropathy, any advise or medical referral will be welcome.
Thanks Poncho.