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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 19 hours ago | Replies (6891)

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Profile picture for ponchoxx @ponchoxx

@sallymagint . I have seen several
Neurologist, with no help, one did all kind of test including Lupus and several other, nerve conductivity and the only thing he found it was a low vitamin B1, it has progressed beyond my knees on his way up, severe numbness and burning sensation the burning is accompanied with a burning in my anus and felling desires of defecating, been through two back interventions one laminectomy L4, L5 and the second a lumbar sinovial cyst on the vertebrae none of them was successful.
I thing this may have caused a augmented the neuropathy.
It was progressing at slower rate however cancer in my prostate was found, I was place on Orgovix and amidiorone for AFIB, this medication have exponential aggravated the neuropathy that I believe is an Autonomic Neuropathy although none of the neurologist have diagnosis, as a fact most of medical personnel don’t believe me, the slightest change of temperature will make my legs cold and the pain starts.
I’m doing radiation when I finish in one month I will try to come back and address the neuropathy, any advise or medical referral will be welcome.
Thanks Poncho.

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Replies to "@sallymagint . I have seen several Neurologist, with no help, one did all kind of test..."

Welcome @ponchoxx, Sorry to hear you haven't found much relief for your neuropathy symptoms. There are quite a few members who have mentioned sensitivity to temperature changes and weather. Here's a related discussion that might be helpful - Temperature intolerance and sensitivity - Autonomic Neuropathy?: https://connect.mayoclinic.org/discussion/temperature-intolerance-and-sensitivity-autonomic-nephropathy/.

From what I've read, if you have poor blood circulation in your legs, it can cause similar symptoms to temperature changes. Have the doctors ever mentioned blood circulation issues?