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Pain in leg muscles, tendons, and knees after Bilateral PE on Eliquis

Posted by smasneri @smasneri, Jul 6, 2023

One month after massive bilateral PE and taking 5 mg twice daily. Experiencing constant and continual pain in legs, mainly behind both knees, in tendons, and some muscle flare ups. Have had two ultrasounds and a CT scan on both legs since I was diagnosed June 6 and they are negative. My D Diemer is .43 and all vitals strong and regular. Echocardiogram shows no strain on heart. We have ruled most everything else out. No trauma to legs, no cuts, bruises or strains. Is this related to the Eliquis? My local hematologist wants me on it for another 5 months, I won’t be able to make that unless this subsides. Anyone else out there having this issue? Recommendations?

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holzy | @holzy | 2 days ago
In reply to @suitstiffany "I have been on elquis for almost 2yrs due PE. I am very active person. I..." + (show)
Profile picture for suitstiffany @suitstiffany

I have been on elquis for almost 2yrs due PE. I am very active person. I use to participate in tri races and running events. Since I have been on this medicine I have had continued muscle weakness especially on the right side leg. Currently in Pt for torn mensicus. I have developed muscle spasms in my left foot to where my toes will stretch out as far as they cab before relaxing. Hurts something awful. My I teach swimming and having trouble keeping up with my clients. I keep asking the doc if I can reduce the med or something. I just have chronic muscle weakness in my right leg and my lower back hurts right around the si joint. Im so over it and the pain especially towards the end of day
I miss running. I can still bike and swim but those are getting harder to do. This muscle weakness is no joke when one spends their lifestyle trying to do right with their body.

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@suitstiffany I have the same pain. I want to get off of this drug.

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dianempx | @dianempx | 2 days ago

Had pain in right knee, inner side to the point where I was limping. Thought it was the statin, went off them for a couple of weeks, but then thought it wasn't the statin because it was so localized. Went to an orthopedist who gave me a cortisone shot, pain immediately went away and I went back on statins. Now, a month later, the inner side of my left knee is giving me the same pain! I am going to try 1/2 statin pill and see if it helps.

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cyclocross | @cyclocross | 1 day ago
In reply to @ruth36 "@cyclocross I’m wondering why they put you on Eliquis when you had mentioned the first blood..." + (show)
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@cyclocross
I’m wondering why they put you on Eliquis when you had mentioned the first blood clot you had you were on Xarelto and it cleared…

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@ruth36
Xarelto has a higher bleeding risk than Eliquis.
Most of the doctors I’ve spoken to prefer it.

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