How do you manage neuropathy and loss of balance and walking ability?
How do you manage the situation when periferal neuropathy affects your balance and walking ability?
Interested in more discussions like this? Go to the Neuropathy Support Group.
How do you manage the situation when periferal neuropathy affects your balance and walking ability?
Interested in more discussions like this? Go to the Neuropathy Support Group.
@judygc Hi JudyGC, the name of the device is Accelera Proprio, if you google that name several topics and how To get in touch with them. I have been wearing device for 13 days at this point. It takes at least 2-3 weeks to see improvement. My main issue is balance, yes I have numbness also. I must say my balance has improved a bit, dont know if it is psycological, time will tell. I also take 300mg gabapentin 1x day, 1200 R Alpha Lipoic Acid, Acytyl L and Benofidamine. I have idiopathic polyneuropathy, diagnosed 10 yrs ago. No more neurologists for me all they want to do is up the Gabapentin and that is a big fat NO for me! Also they want to do a nerve conducting test, which I had 10 yrs ago and it was extremely painful for me, never again! I get lots of info on Mayo Connect, AI, and Google (sometimes) All people dealing with this disease is different, no people have same symptoms, as far as I can see. Give Accelera a call, return policy is 30 days, tell them your symptoms, Wishing you luck and hoping you can find relief.. Donna
@jum13 I was diagnosed with PN 30 years ago, but since I was exercising at the time it seemed to have little effect on my life. It gradually worsened until open heart surgery laid me low for about 6 months; that did it - I am barely mobile now. Fortunately I have the painless form of PN, but I am about to lose what mobility I have, without any treatment. Suggestions?
Joe
@bjk3
This reads just like my experience so far. I have been told that there is no treatment for PN but you have been helped by Lyrica. I have been helped by a spinal injection and will look into that again if necessary. I was referred to a neurosurgeon for back surgery but he said he could not help me because I have PN. I will ask my primary care physician about Lyrica. Please continue to let us know how you are doing with this unexpected turn of events.
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1 Reaction@eddavidr i only take gabapentin at night to ease a bit of the foot pain and help me sleep - your magnesium supplement issue is why I never take the advice of well meaning people - and I know many - who are always recommending supplements without knowing a thing about my health issues, For some reason, a lot figure if it is OTC and sold in the nearest grocery store it can't do any harm. Many don't trust doctors which is fine but they do trust perfect strangers who act as doctors. Very odd.
@eddavidr
Thank you for that information. I took gabapentin a while back and it did nothing for me at all.