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How do you manage neuropathy and loss of balance and walking ability?
Neuropathy | Last Active: Jul 28 10:00am | Replies (384)Comment receiving replies
@bigal1956 I too have loss of balance very bad. I can't drive,swim,run,walk too much, leave my house unattended, play any sports, play with my grandchildren, work in my beloved garden,dance,or travel. I think I have tried everything but so far nothing helps except physical therapy which gives me confidence to do some things because of the physical therapist there to help me . I have fallen more times than I can remember but never badly hurt. So sorry you have this burden, stay positive and don;t give up.
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@shortie
Hi- I too have terrible balance & leg weakness due to CIDP and Sjogrens. I will have my 2nd Rituxan infusion this week as other treatments haven’t slowed it down.
It’s hard not to get discouraged as your world shrinks but I make myself go to PT and social gatherings -thank God for my husband who helps me otherwise I would be in assisted living.
The Rituxan has caused major fatigue but that’s common for a while I’m told. Hang in there and do what you can- pray that things will improve for you. Ellen