How do you manage neuropathy and loss of balance and walking ability?

Posted by rachel44 @rachel44, May 18, 2025

How do you manage the situation when periferal neuropathy affects your balance and walking ability?

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Profile picture for judygc @judygc

@allegheny Can you share the name of the device. I will try anything to help this numbness

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@judygc Hi JudyGC, the name of the device is Accelera Proprio, if you google that name several topics and how To get in touch with them. I have been wearing device for 13 days at this point. It takes at least 2-3 weeks to see improvement. My main issue is balance, yes I have numbness also. I must say my balance has improved a bit, dont know if it is psycological, time will tell. I also take 300mg gabapentin 1x day, 1200 R Alpha Lipoic Acid, Acytyl L and Benofidamine. I have idiopathic polyneuropathy, diagnosed 10 yrs ago. No more neurologists for me all they want to do is up the Gabapentin and that is a big fat NO for me! Also they want to do a nerve conducting test, which I had 10 yrs ago and it was extremely painful for me, never again! I get lots of info on Mayo Connect, AI, and Google (sometimes) All people dealing with this disease is different, no people have same symptoms, as far as I can see. Give Accelera a call, return policy is 30 days, tell them your symptoms, Wishing you luck and hoping you can find relief.. Donna

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Profile picture for jum13 @jum13

I have had neuropathy for almost 25 years now. 5 years ago I began walking/biking and the results were amazing. Aside from the pain and discomfort of the illness, I could move very well. The past 6 months I have been experiencing an increased level of difficulty in walking. My legs are tight , my calves and hamstrings feel swollen, my ankles feel weak as do my quads. I am walking slower and shorter strides. I’m trying to grasp at straws to figure out what is happening. It dawned on me that all this has happened since I started gabapentin. I am wondering if it is that or the normal progression of the disease? The medication does help so ………

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@jum13 I was diagnosed with PN 30 years ago, but since I was exercising at the time it seemed to have little effect on my life. It gradually worsened until open heart surgery laid me low for about 6 months; that did it - I am barely mobile now. Fortunately I have the painless form of PN, but I am about to lose what mobility I have, without any treatment. Suggestions?
Joe

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Profile picture for bjk3 @bjk3

@jum13 That is a very interesting thought...disturbing, too. I, too, have had P.N. for about 25 years and have been taking Pregabalin (Lyrica) for about 4 1/2 years, having briefly tried the Gabapentin (but had side effects right away). This was after about 4 years of spinal injections for pain and then back surgery. As of the last few months I've had increasingly difficult problems with mobility, much as you describe. I appreciate your post - it raises a legitimate concern. If you find an answer, please do keep us posted. Like you said, the medication does help -- a lot, for me. I've not been able to cut back without excruciating pain. Blessings to you, Barb

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@bjk3
This reads just like my experience so far. I have been told that there is no treatment for PN but you have been helped by Lyrica. I have been helped by a spinal injection and will look into that again if necessary. I was referred to a neurosurgeon for back surgery but he said he could not help me because I have PN. I will ask my primary care physician about Lyrica. Please continue to let us know how you are doing with this unexpected turn of events.

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Profile picture for eddavidr @eddavidr

@jum13 Yes gabapentin can cause severe balance problems and falls.

I was prescribed a low dose of gabapentin because of my neuropathy but I began to have balance issues. I didn’t realize the correlation until the dose was increased and I began to stagger into walls. I’d crash into the wall on my left as I walked, take 3 or 4 steps and I’d crash again, and try as I might I couldn’t walk straight.

In my case, I also have had generalized myasthenia gravis since childhood. Gabapentin is contraindicated for people who have MG. I stopped taking the Gabapentin and I don’t have the balance problem anymore.

I also cannot take magnesium supplements because of myasthenia. It inhibits acetylcholine production which can cause a myasthenia crisis.

We tried Duloxetine but it interfered with platelet clotting and I bled a lot.

We’re all different. I’m not suggesting you have myasthenia gravis but gabapentin can cause severe balance issues leading to falls.

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@eddavidr i only take gabapentin at night to ease a bit of the foot pain and help me sleep - your magnesium supplement issue is why I never take the advice of well meaning people - and I know many - who are always recommending supplements without knowing a thing about my health issues, For some reason, a lot figure if it is OTC and sold in the nearest grocery store it can't do any harm. Many don't trust doctors which is fine but they do trust perfect strangers who act as doctors. Very odd.

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Profile picture for eddavidr @eddavidr

@jum13 Yes gabapentin can cause severe balance problems and falls.

I was prescribed a low dose of gabapentin because of my neuropathy but I began to have balance issues. I didn’t realize the correlation until the dose was increased and I began to stagger into walls. I’d crash into the wall on my left as I walked, take 3 or 4 steps and I’d crash again, and try as I might I couldn’t walk straight.

In my case, I also have had generalized myasthenia gravis since childhood. Gabapentin is contraindicated for people who have MG. I stopped taking the Gabapentin and I don’t have the balance problem anymore.

I also cannot take magnesium supplements because of myasthenia. It inhibits acetylcholine production which can cause a myasthenia crisis.

We tried Duloxetine but it interfered with platelet clotting and I bled a lot.

We’re all different. I’m not suggesting you have myasthenia gravis but gabapentin can cause severe balance issues leading to falls.

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Thank you for that information. I took gabapentin a while back and it did nothing for me at all.

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