Trying to decide between Breztri and Stiolto inhalers.
The Breztri inhaler causes so much phlegm and hoarseness, sometimes i can hardly speak. Do others have the same issue with Breztri. Is this a common side effect?
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@jsh66 It is Ensinephrine used with a nebulizer. A link to their website:
https://ohtuvayre.com/
@capnjack, you need to rinse your mouth thoroughly and also gargle (and spit it out) after using Brez. On top of my head, I think it does say in the instructions that you need to rinse, but it also does not say to gargle, which will solve your problem (as it did mine)
@tcarson52 how long have you had ph? What meds are you on for this. I just recently found out I had this.
@jovankovacic1953 yes! Definitely do need to double rinse that powder out of your mouth after use.
Tried it for a few months-give it a chance-had to stop as it caused arrythmias. Using Wixela and Spriva.
@lizjlb I take generic dapagliflozin & sacubitril both are to slow down heart and a mild diretic. It helps the strain on my heart as I understand it. It did help with breathing. Neither are PH medications. I don’t really understand all of it. Thinking of going to Shands to a specialist after my next pft test. I found out about 9 months ago, I think I’ve had it a while just didn’t know it. I had echo but it didn’t show it. The heart cath confirmed it as they measure pressure from the heart. I don’t know which caused the most shortness of breath. I think it’s the PH .
@tcarson52 why did they do a right cath if nothing showed up on echo? my echo showed borderline increase in pulm pressures. Wondered what they recommended to take. concerned because 1-3 yrs is not a good outcome. I wouldn’t be doing a pft test. that can really be hard on heart i would think.
I think my breathing got worse after a stress test. Would you please let me know what your future plans/meds are. I appreciate your reply. thanks.
3194570393. or. jean wayland bohlen (on FB.). I can friend you and we could discuss on messenger. thanks again.
@tcarson52
what were you’re symptoms compared to regular copd.
thanks
@lizjlb my SOB was different. I kept telling doctors but no one really listened. I followed up on a CT test I had which lead to cardiac dr which lead to heart catheter test. I was put on 2 medications and it helped a little.
@lizjlb because on a CT I had in hospital it said extensive calcium build up in arteries. I read that and made appointment with cardiologist. He is the best. Did the echo it said no PH but he went farther and did the heart catheter test which showed the pressure in both arteries were up. My BP was also high. I didn’t have bad restrictions from calcium but did have PH. I’m on 2 meds to lower BP and help my heart beat slower so not such a strain