Dying Well

Posted by edsutton @edsutton, May 4 12:07pm

Dying well is (hopefully) the last part of our efforts to age well.

As part of our life planning, we need to think about what dying well means for each of us.

And it is not easy to distinguish clearly between reasonably hopeful planning for our dying days and what is just “hoping for the best” while avoiding real preparation.

We need to recognize that at some point dying becomes something we cannot bargain with. It will eventually happen on its own terms.

It is reasonable to think about what we hope for, but then we need to ask “What can I do to increase my chances of dying as I hope?” and “What should I do to prepare for the possibility that things may not go as I hope?”

For those of us who are planning and making life/home adjustments to age in place, do we also hope to die in place? Do we also have plans if it turns out that dying in place is not possible? What are these plans?

I’ll share some personal things later, but will stop here for open ended responses.

Interested in more discussions like this? Go to the Aging Well Support Group.

Profile picture for Francine Hardaway @fhardaway1

I've recently decided that I'd. like to have a green burial, by which I can go back to the earth.
No Embalming: Bodies are kept cool using natural methods like dry ice rather than toxic chemicals.
Biodegradable Containers: Only natural, easily decomposable materials (wicker, cotton shrouds, pine) are permitted.
No Concrete Vaults: Instead of using heavy, non-biodegradable liners, the body is placed directly into the earth.
Natural Memorialization: Graves are typically marked with natural, flat stones or native plants rather than large, polished monuments

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@fhardaway1 "No Concrete Vaults" I think some areas in the states require the concrete, you may already know this.
Otherwise I agree with all and do hope to avoid the concrete vaults.
Barbara

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Be aware that funeral directors may say things are "required by law," when in fact it is not true. They may have been taught this in mortuary school and don't realize it's not legally required because it's what they've always done.

Books by Caitlin Doughty are a source of good information about death, care of the body and burial.
She is a mortician who has dedicated her life to promoting natural burial.

Simple burial options are becoming more common around the US.

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Profile picture for shmerdloff @shmerdloff

Has anyone looked into the propriety of leaving a writing to be read at your funeral. Is it loving parting words or a controlling hand from the grave (almost)? Bad taste?
A lady physician's epitaph at my go-to cemetery reads:
" Children. Before you go. One more thing...."
So far mine is "What did you expect?"
Anyone here thoght about theirs?
Commercial : "I want pepperoni on my tombstone." ( pizza that is).
Oh! and "I was hoping for a pyramid," or "Now I know something you don't."
The Death scene in Monty Python's Meaning of Life.
Sorry to offend anyone.

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@shmerdloff To me, propriety signifies being socially or morally acceptable. I think if we want something to be said as "coming from our mouths", we should be able to say what we want. Of course, this is coming from a red-headed rabble rouser ;))
Ginger

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Well, we’re having quite a lesson in our co-housing community.

I mentioned that C. was diagnosed with advanced, spreading lung cancer late in May. Almost the same week M. was similarly diagnosed. Both are women, late 60s, never smoked.
The first step for each was genetic studies of their particular cancers.

M. won the luck of the genetic draw. Her cancer is specifically targeted by new medicines, and she is improving noticeably after starting treatments.

C.’s cancer has no targeted treatment. Her condition is deteriorating rapidly. It’s quite a shock to all in our community.

Not long ago C. was “planning to make end-of-life plans.” Now it doesn’t look like she has the strength to visit the natural cemetery she hoped to visit. She has good, close family who will take care of things as she wants.

I’ve had friends die of cancer, but never saw such rapid progression of the disease.

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Profile picture for edsutton @edsutton

Well, we’re having quite a lesson in our co-housing community.

I mentioned that C. was diagnosed with advanced, spreading lung cancer late in May. Almost the same week M. was similarly diagnosed. Both are women, late 60s, never smoked.
The first step for each was genetic studies of their particular cancers.

M. won the luck of the genetic draw. Her cancer is specifically targeted by new medicines, and she is improving noticeably after starting treatments.

C.’s cancer has no targeted treatment. Her condition is deteriorating rapidly. It’s quite a shock to all in our community.

Not long ago C. was “planning to make end-of-life plans.” Now it doesn’t look like she has the strength to visit the natural cemetery she hoped to visit. She has good, close family who will take care of things as she wants.

I’ve had friends die of cancer, but never saw such rapid progression of the disease.

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Dealing with life's wacky changes:
Fifteen years ago we made our medical power of attorney documents.
My wife has first MPOA for me, and my second is a friend and professional associate with whom we were close at that time. Because of our age and possible cognitive issues, the second MPOAs are important.

Since then some things have changed. My friend and his wife have become followers of an internet based cult/religion. In a recent conversation I realized that he now considers my end-of-life orders contrary to the messages from heaven he follows. He urges me to learn all about this.
I'm glad we had the discussion!

It's time to find a new person for second POA.

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Profile picture for edsutton @edsutton

Dealing with life's wacky changes:
Fifteen years ago we made our medical power of attorney documents.
My wife has first MPOA for me, and my second is a friend and professional associate with whom we were close at that time. Because of our age and possible cognitive issues, the second MPOAs are important.

Since then some things have changed. My friend and his wife have become followers of an internet based cult/religion. In a recent conversation I realized that he now considers my end-of-life orders contrary to the messages from heaven he follows. He urges me to learn all about this.
I'm glad we had the discussion!

It's time to find a new person for second POA.

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@edsutton Cremation is an option that allows the spreading of ashes, to burial of the ashes in a container, such as a "SAD" box which is a wooden box that will disintegrate over time. Some people have kept the ashes in urns in the house. My wife's ashes were placed in a SAD box on a hill overlooking our house. Her mother's ashes were spread by her three children around the grounds of a cabin they had in AZ. The Cremation process costs around $5,000 and is by far, the least expensive way to handle a body with dignity.

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Profile picture for ess77 - Elizabeth @ess77

@edsutton,@grammato3, and all... I began this thought process several years ago after receiving a diagnosis that shook me deeply, pushing me into a different reality. I thought I had dealt with my mortality fairly well during and after caring for 12+ years for my mother who suffered greatly from Altzheimer's. I was the only family member who helped her during those years, so there were many years of deep searching dealing with emotional family and personal relationships as well as mortality itself.

I found after receiving the diagnosis and prognosis of my own new illness, there was more internal work to be done. I withdrew peacefully into my thoughts, sitting in my home quitely, thoughtfully working through the disease information and prognosis, and moving into the practical aspects of ending life.

My son is now 57 years old, only child and I am now single for many years, living alone. My son is 100% disabled for over 25 years and deteriorating fairly quickly now. If I survive him, I am determined to leave him with a minimum of turmoil, decisions and issues to face.

I spent the last several years clearing out my home, completely. I alone cleared my mother's home after her move into assisted living and was devastated by that experience. She was not prepared for living at that point, surely not for dying. I had her entire life's belongings to go through - papers, photos, clothing, shoes... she loved gorgeous shoes... furnishings, antiques, paintings, and of course the normal kitchen and living stuff. I did it all by myself. Alone.

My business suffered for a couple of months during that time, as I was not available and had to hire more help. Decisions are overwhelming... a decision on each piece of paper I picked up, each piece of jewelry and every full drawer. It was devastating for me emotionally, physically, financially, in every aspect of my life.

At that moment, I made a clear decision that would not be my legacy for my son. In 2025, I cleared my home, completely. I hired an estate sale company and sold everything I didn't love in some special way and want to keep until my death. I sold many dear collection, furniture - even family pieces that were hard to let go, but my son will not want nor use any of that and other family had everything they could need. So, I mourned and went through quite a time letting go of my life other than necessities and the most dear items I own. It continues to be hard at times, remembering and missing some things, but I am relieved, unburdened by things now and have a lightness about my shoulders. It's done. It feels excellent.

I gave my dear son the best, kindest, most loving gift a mother can give. Peace.

Then, I had lawyers complete the paperwork you've discussed, after working the particulars with my son. It made him deal clearly with my mortality as well. That isn't easy for our children. But, necessary.

Left to accomplish are the final financial issues of final planning, cemetary and such. I wrote my obituary, my celebration of life or memorial preferences, even the hymns and music I would love at any service. All up to my son or whomever is planning. No service is necessary at my age and situation. Many of my friends are gone now, unable or unwilling to attend such services, and it may simply be an unnecessary expense and a lot of work. I don't truly care at this point. Do what is best for him.

I am now working on my son to get the paperwork completed and decisions made for his last wishes. I may deal with that depending on his health, but someone will need this completed, so I must help him deal with his reality.

I also had my home renovated a bit for more comfort and ease of aging... large walk-in shower, new flooring and painting, easy decorating for my comfort and simplicity. I have a small kitchenette in an upstairs bedroom so I can live comfortably upstairs, safely avoiding the stairs if I need. It is a good situation for my life at this moment.

After experiencing 2 different month long NH rehab visits last year learning to walk again, regaining limited mobility and strength from serious hospitalization, I made a firm decision and made it well known I do not intend to move into a NH if I am able to make my own decisions. I learned a lot and am quite determined to not be in that situation again.

So, there you go, folks. I'm here for however long I am here... until my lord and I come face to face. I am attempting to live these months, years with clarity and have some control and peace over my life. I enjoy being alone now, enjoy my 'new' home and my situation, enjoy my scaled down lifestyle. I have a lovely peace knowing the junky stuff is completed.

May you take the steps you choose to walk as you choose this last journey in life. We have no control over the method or timing we leave this life, but we can and I think we should do our best to leave is as orderly as possible. No, I'm not a control freak, but it does feel wonderful knowing I am leaving my son with as clear a path as I can. I faced reality and moved ahead. Lovely!
Blessings, Elizabeth

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@ess77 What an intelligent, empathetic and positive attitude towards the end of life. I second everything you say. I have ALS and my time is limited. I have been reading an excellent book by Atul Gawande called "Being Mortal - Illness, Medicine and What Matters In The End". Gawande is a highly respected American doctor, writer for the New Yorker, and Professor of Medicine at Harvard University. To quote from the blurb about the book " Atul Gawade..explores the modern experience of mortality - what it's like to get old and die, how medicine has changed this and how it hasn't, where our ideas about death have gone wrong". It is a very sensible book which everyone approaching old age should read.
In my own case, I intend to have neither a burial nor a cremation. I am donating my body to science. I like the idea of a young medical student learning from me, even after I am gone. There will be no formal funeral, but some time after my death I have asked my children to hold a Wake, and invite all my family and friends to get together and share memories and stories. This is not for everyone, but above else we should get our paperwork done well in advance, make sure people know of our wishes, and not leave a mess for our children to clean up. Gradually winding up our affairs as we age is one gift we can give to our children and to those following after. Best wishes and greetings to all who are following the same path as me.
From @ellu

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Profile picture for ellu @ellu

@ess77 What an intelligent, empathetic and positive attitude towards the end of life. I second everything you say. I have ALS and my time is limited. I have been reading an excellent book by Atul Gawande called "Being Mortal - Illness, Medicine and What Matters In The End". Gawande is a highly respected American doctor, writer for the New Yorker, and Professor of Medicine at Harvard University. To quote from the blurb about the book " Atul Gawade..explores the modern experience of mortality - what it's like to get old and die, how medicine has changed this and how it hasn't, where our ideas about death have gone wrong". It is a very sensible book which everyone approaching old age should read.
In my own case, I intend to have neither a burial nor a cremation. I am donating my body to science. I like the idea of a young medical student learning from me, even after I am gone. There will be no formal funeral, but some time after my death I have asked my children to hold a Wake, and invite all my family and friends to get together and share memories and stories. This is not for everyone, but above else we should get our paperwork done well in advance, make sure people know of our wishes, and not leave a mess for our children to clean up. Gradually winding up our affairs as we age is one gift we can give to our children and to those following after. Best wishes and greetings to all who are following the same path as me.
From @ellu

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@ellu For those who are single, winding down our affairs is a gift and shows that we care for anyone who will have to clean up what we leave behind.
Now to get it done!
This thread is a good reminder.
Barbara

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Profile picture for blm1007blm1007 @blm1007blm1007

@ellu For those who are single, winding down our affairs is a gift and shows that we care for anyone who will have to clean up what we leave behind.
Now to get it done!
This thread is a good reminder.
Barbara

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@blm1007blm1007

It's kind of like being a good house guest.

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