Having PAE next week, what can I expect the next day?

Posted by oldfiddler @oldfiddler, Jun 24 8:54pm

68 years old, 100cc prostate, very large median lobe. What can I expect the very next day after PAE, or within 24 hours. Travel is about three and a half hours between home and the hospital. The nurse suggested that I stay nearby for the first night. If the first night or next morning is going to possibly be rough I’d rather not stay at a friend’s house and put them through my discomfort.
I’m expecting the “you’ll hate me for two weeks” part of the recovery. I haven’t heard how soon it begins.
Thanks.

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I'm 70, I had a TURP 11 years ago. It grew back, but only to 50cc, but it grew in the direction of the urethra and I was having major symptoms again. On Monday, 6/29, I had a P.A.E. and let me tell you, into the evening I was peeing every 5-10 minutes. No sleep all night, I was manic. I called the Dr. at 5:30am and he said I could go get a catheter put in or give it some time and I'll feel a little better the coming evening. It was so bad, I opted for the cath. In the emergency room for 4 hours, they couldn't get it in past the swelling of the prostate. They tried 3 times and gave up. Home I went without one miserable. Come Tuesday evening, I was doing somewhat better, and not peeing every 5-10 minutes. Now it's like 15-25 minutes, I'm carrying a pee bottle everywhere I go since I pee'd myself twice- the urge comes so quick, you have 5-10 seconds to get to the toilet or it's over- out it comes. Anyway, it's Thursday at midnight, and things continue to improve. The urgency is less, I'm sleeping at night, and the pee strength has some gusto to it. Figure on having some minor issues days 3-7, some people up to 14 days. Then minor issues go away and things improve over the next 6 months or so. At least in 80-85% of the people.........hope you are 1 of them.

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My husband is scheduled for July 16 with Dr. Justin Lee in Sarasota FL. We will be driving 2 hours plus from Orlando. He is currently catheterized. I hope you will share your experience with us since you may have already had the PAE. Thanks looking forward to hearing from you.

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To answer my original question, the first 24 hours for me was not too bad. Right after the procedure I had to ride for three hours in the car to get home. I did have a little bit of burning or itching in my urethra. I’ve sometimes experienced this for the last year. I kept thinking that this is not too bad at all.

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Profile picture for slopez2026 @slopez2026

My husband is scheduled for July 16 with Dr. Justin Lee in Sarasota FL. We will be driving 2 hours plus from Orlando. He is currently catheterized. I hope you will share your experience with us since you may have already had the PAE. Thanks looking forward to hearing from you.

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@slopez2026 The first 24 hours was not bad. The ride home was OK.

The second 24 hours was significantly worse. The burning when going pee included my bladder and the penile part of the urethra. It burned the entire time. It subsided after I was done. The pain level was way up there. Sitting down on a chair or couch places too much pressure in my rectum. Reclining on the couch or bed granted me some relief.

The third 24 hours was the worst so far. I started freezing and knew I should start monitoring my temperature. I got up to 100.5°f and felt like I had an infection. I took Tylenol and waited an hour. The fever did not lower. I took 600mg ibuprofen and an hour later I was at 99.8°.

Just lying on the couch I can feel stinging or itching at the prostate site and the tip of my penis. That’s when the bladder spasms started. I kept drinking water, juice, or iced coffee. Every fifteen minutes the spasms would prompt me to void. A tiny bit would come out with the pain very high, I wouldn’t be able to talk. Standing caused the spasms to come on strong and more often. The anti bladder-spasm medication really helped. I could wait for about an hour before taking a trip to the bathroom.

In four hours the fourth 24 hours will begin.

Best of luck for your husband and this procedure. There is a lot of information in this forum. For me when guys mentioned burning upon urination I didn’t realize it would be so bad.

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Profile picture for sshz @sshz

I'm 70, I had a TURP 11 years ago. It grew back, but only to 50cc, but it grew in the direction of the urethra and I was having major symptoms again. On Monday, 6/29, I had a P.A.E. and let me tell you, into the evening I was peeing every 5-10 minutes. No sleep all night, I was manic. I called the Dr. at 5:30am and he said I could go get a catheter put in or give it some time and I'll feel a little better the coming evening. It was so bad, I opted for the cath. In the emergency room for 4 hours, they couldn't get it in past the swelling of the prostate. They tried 3 times and gave up. Home I went without one miserable. Come Tuesday evening, I was doing somewhat better, and not peeing every 5-10 minutes. Now it's like 15-25 minutes, I'm carrying a pee bottle everywhere I go since I pee'd myself twice- the urge comes so quick, you have 5-10 seconds to get to the toilet or it's over- out it comes. Anyway, it's Thursday at midnight, and things continue to improve. The urgency is less, I'm sleeping at night, and the pee strength has some gusto to it. Figure on having some minor issues days 3-7, some people up to 14 days. Then minor issues go away and things improve over the next 6 months or so. At least in 80-85% of the people.........hope you are 1 of them.

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@sshz Thank you for your post. Yours seemed to come on quicker than mine. I found that lying prone is a great option for me.

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You should not be drinking juices, coffee or teas after the procedure. Plain water, as much as you can drink. Most juices are acidic, not good for the bladder. Coffee and teas are diuretics, and make you pee more often.

4 days out from Monday, I'm feeling a lot better, maybe 70% and improving daily. Everyone is different, some people have 1000's of beads inserted, I only had 400. But it depends on the size of the prostate and how many/how large the feeding arteries are. Some people breeze by everything, others suffer beyond belief.

The Dr. also said keep the right leg elevated the first day or two and no lifting for 3 days.

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I also neglected to talk about the experience of the Dr. Many places I've read things state it's important to find a Dr. who has done many of these procedures, mine has done over 2000 of these. Ask your Dr., don't settle for someone with low numbers. I can't stress this enough, lots can go wrong in these procedures such as the tip of your penis dying and turning black, among other things. Experience is KEY!

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