Doesn’t anyone else feel …… ?

Posted by sunnygardens @sunnygardens, Jun 25 6:27pm

Everyone seems so calm and reasonable on here. Am I the only one who gets fed up and irritable?
This evening two things are driving me nuts: one is the constant contrariness, increased from his normal contrariness. (My daughter once said he’s the most contrary person she’s ever met. That was three years ago. Before these unexplained symptoms began.) The other irritation (aaarrrghh!!!) is the nearly always saying “Oh, I know.” When clearly, until it was explained, he did NOT know. (This too is an increase from his normal level of knowing everything.)
It truly seems that all the incompatible characteristics are greatly exaggerated now.
As is my level of irritation, which certainly does not help.

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

To everyone in this caregivers: dementia group. It’s obvious that you’re stressed to the max and need a good vacation! It reminded me of my stressful years-husband, sons, school (for me), and my husband’s new army assignment miles+++ away. I would sound off to my sister and she would just say “talk to the kitties.” She would demonstrate in a high-pitch voice how to talk to the kitties. More like a squeaky voice. Kitties love pure nonsense talk like the weather or what crazy kids get up to. Eventually, we’d be laughing and everyone would be trying to talk to the kitties! Except my husband. He was serious and wanted to know what was so funny.
Even now I “talk to the kitties!”

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Profile picture for georgescraftjr @georgescraftjr

@dederickve

I feel for you.

Like you, I have been carrying the load, which has taken a toll on me. (My blood pressure is always elevated; I have a torn ligament in one of my thumbs and two in my right foot; and I have tears in the meniscus of my right knee--and need a knee replacement, which I can't get because I don't have sufficient relief. My husband doesn't want to burden any of his five children--entitled, trust-fund babies.)

Hang in there, Sister.

George's Wife

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@georgescraftjr Hi George's Wife....my blood pressure is always elevated too! So hopefully, you are on something. I'm on two things! I have a bad hip, a problematic implant, that I'm holding at bay, as that's a complete redo, and I don't have time to breathe, let alone get the tooth fixed. Please take time for you. Best, Karla

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@marilynt Welcome to Mayo Clinic Connect! What a great day to be a new member! I hope you can see this wonderful group in action—how they share tips and experiences. I love everyone in the group because they are so honest and don’t sugar coat anything. Welcome and share, share, share!

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@becsbuddy Thank you! It is so good to read the comments and feel better about myself and my situation. 💖

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Profile picture for ocdogmom @ocdogmom

@marilynt My husband's prostate cancer was caught early enough that a prostatectomy was an option to completely eliminate the cancer. At the time, at least 10 years ago, my husband was able to make his own health care decisions as the dementia had not reared its ugly head at that point. So he had the operation and has had no evidence of prostate cancer since. However, in 2024 he was diagnosed with Mantle cell lymphoma and underwent chemotherapy and immunotherapy that was devastating but worked and now he is in remission. The whole experience I think accelerated the onset of his dementia. He definitely had "chemo brain", lost 30 pounds and required transfusions. The chemo and immunotherapy worked and he is now in remission from that cancer. He/we have been through so much in these last years.
You are so right, it is so stressful to see what is happening and wonder what tomorrow will bring. I think when we are stressed like this we need to find something that gives us joy in the moment. For me it is gardening and music. A good Santana song takes me to another place. Keep posting here. I have found so much support and helpful comments here. I think it has saved my sanity or at least enabled me to "hang in there"

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@ocdogmom Thank you for sharing about your husband and for the encouragement! Both of you have dealt with so much and I appreciate you sharing your story.
I enjoy music and reading so that does help! I love gardening but that is on pause since I can’t yet bend or kneel enough because of the knee surgery. But that is a great goal for me to resume once I can!

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Profile picture for kjc48 @kjc48

@georgescraftjr Hi George's Wife....my blood pressure is always elevated too! So hopefully, you are on something. I'm on two things! I have a bad hip, a problematic implant, that I'm holding at bay, as that's a complete redo, and I don't have time to breathe, let alone get the tooth fixed. Please take time for you. Best, Karla

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@kjc48

Thanks for the reminder to "take time," when we hardly "have time to breathe."

Take Time
An Old English Prayer
Author Unknown

Take time to dream,
it is hitching your soul to the stars.

Take time to work,
it is the price of success.

Take time to think,
it is the source of power.

Take time to play,
it is the secret of perpetual youth.

Take time to read,
it is the foundation of knowledge.

Take time for worship,
it is the highway of reverence
and washes the dust of the earth from your eyes.

Take time to be friendly,
it is the road to happiness.

Take time to help and enjoy friends,
it is the source of happiness.

Take time to love and be loved,
it is the sacrament of life.

Take time to laugh,
it is the music of the soul.

Take time for beauty,
it is everywhere in nature.

Take time to look around,
it is too short a day to be selfish.

Take time for health,

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deme17z
My husband 86 yr-old was diagnosed with mild age related dementia a couple of years ago He is taking mementine and donepecil tabs.Yes, he doesnt do anything inthe house escept watching TV and sleeping.He has weak balance and walking. He uses a walker so it is hard for him do chores in the house except if he wants his coffee{instant{he can, will fix cereal, or fruits for his snacks.Its hard I cant leave him alone in the house because am afraid he might fall because his walking is odd he drags his feet.He is doing physical theraphy for mobility and balance but looks its not helping him walk better.
3 or 4 times a week I try to think of reason so we can get out of the house for hours because if we stay in he will only sit and sleep all day if you let him. I ask him if he is tired he says no.
Sometimes I get so frustrated.

he

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Profile picture for kjc48 @kjc48

@georgescraftjr Hi George's Wife....my blood pressure is always elevated too! So hopefully, you are on something. I'm on two things! I have a bad hip, a problematic implant, that I'm holding at bay, as that's a complete redo, and I don't have time to breathe, let alone get the tooth fixed. Please take time for you. Best, Karla

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@kjc48
I signed my husband up for daytime respite care so I could go to the dentist (since he would not stay in the waiting room waiting for me, he would just leave, alone).
Hopefully you can find respite care so you can address that tooth!

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Profile picture for marilynt @marilynt

@ocdogmom Thank you for sharing about your husband and for the encouragement! Both of you have dealt with so much and I appreciate you sharing your story.
I enjoy music and reading so that does help! I love gardening but that is on pause since I can’t yet bend or kneel enough because of the knee surgery. But that is a great goal for me to resume once I can!

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@marilynt
Look into raised, raised beds. They are great for we seniors who don't want to kneel down anymore.
They are built at waist height.

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Profile picture for judimahoney @judimahoney

@kjc48
I signed my husband up for daytime respite care so I could go to the dentist (since he would not stay in the waiting room waiting for me, he would just leave, alone).
Hopefully you can find respite care so you can address that tooth!

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@judimahoney Thanks, Judy. Again, your logic prevails...respite care in trade for a neglected inflamed implant. Not sure I'm loving this aging process. Happy 4th. Best, Karla

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Profile picture for Becky, Volunteer Mentor @becsbuddy

To everyone in this caregivers: dementia group. It’s obvious that you’re stressed to the max and need a good vacation! It reminded me of my stressful years-husband, sons, school (for me), and my husband’s new army assignment miles+++ away. I would sound off to my sister and she would just say “talk to the kitties.” She would demonstrate in a high-pitch voice how to talk to the kitties. More like a squeaky voice. Kitties love pure nonsense talk like the weather or what crazy kids get up to. Eventually, we’d be laughing and everyone would be trying to talk to the kitties! Except my husband. He was serious and wanted to know what was so funny.
Even now I “talk to the kitties!”

Jump to this post

@becsbuddy

Thanks for being a mentor, and for always encouraging us--members of this amazing support group.

Hope you are taking care of your own health issues--something we caregivers often neglect. (Because I am so focused on making sure that George gets his meds, I often forget to take my own meds before I go to sleep,)

George's Wife

P.S.

Ironically, I recently posted a poem, and I accidentally cut off the last line. Here are the last two lines of the poem, "Take Time":

"Take time for health,
it is the true treasure of life."

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