Cost of memory care for an Alzheimer's patient
Can any of you share with me what the cost of a care center for an Alzheimer's patient is. My husband has Alzheimer's and he is getting worse. I already found out that he does not qualify for Medicaid.
Thanks
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@judimahoney
Thank You
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1 ReactionJune 30, 2026
Memory Care move in day for my husband.
I don't think I have ever been so concerned about anything in my life. I am so worried about how he will adjust. I have done so much for him during the last 4 years. I pray that he will tell caregivers when he is having a problem. Will they treat him with respect, and will they be kind to him?
I am also worried about me. After being married for 59 years how will it feel living totally alone? I am 80 yrs old. Will I be able to handle driving to the Memory Care Center every day?
So much for the Golden Years...
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11 Reactions@katrina123 , I was very apprehensive when driving my cousin to Memory care, but it was a godsend. She needed a higher level of care than Assisted Living, so I called the facility, which I had visited weeks earlier, and they said come now. We’ll serve her dinner and get all the paperwork done. The director and staff gave us a Downtown Abbey reception…all standing in front of entrance with a wheelchair, smiling, warm welcomes…..they took her to dinner while I signed paperwork. They also unloaded her luggage and unpacked her things. When I got to her room, she was smiling and watching tv with her roommate and new best friend. She seemed to relax, since the staff knew how to care for her. I knew I had made the right decision. This facility was located in a rural area in NC. Costs are expensive, but far less than other parts of the country.
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5 Reactions@lisagrey So interesting! Would love to hear more about this. How you came across this facility and decided to select them. Does the staff speak English, or is your mother from there?
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1 Reaction@katrina123
So sorry to hear of your recent difficult experiences.
FYI: I just had a long call with our nephew who has placed his father in an assisted living facility with memory care. He stated that he wished he had asked about the rate of turnover in the staff that actually works with the patients. This makes a huge difference in the quality of care. For example: Part of the staff does not have the skills or inclination to help a person with dementia with toileting, and then they blame it on the patient.
I hope you find a great place for your husband!
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5 ReactionsDear @katrina123
I understand well the fears that you are facing. My husband and I have been together for 48 years. You have us beat by 10 years, years that I, sadly, will not have with my Gary. You have many decisions to make.
First let me share a quote that I turn to again and again:
“Anxiety does not empty tomorrow of its sorrows, but only empties today of its strength.” — Charles Spurgeon
Now I will share my story, not to suggest that you think or do what I did, but simply so that you get the benefit of what I experienced.
Last year I almost died. One night I found that suddenly I could neither type nor write. Other symptoms started to appear. By the time I realized that I needed serious neurological help, AND made arrangements for my husband to enter memory care if the ER determined that I had a serious issue, things were dire. It turns out I had a massive bleed in my head. Thank goodness they were able to operate immediately and, amazingly, I recovered fully.
In the meantime, my husband was in a medium-sized facility with a good reputation, 5 minutes from our home. He was still going to a day-program from 10 – 2pm and, first, in the week after the surgery, my brother would visit him daily. Then I visited him daily. He was chipper, was happy to see me, did not complain when I left. Friends, family and our neurologist told me that that was the living arrangement that made sense for his stage and for my health and life. I knew I needed the time to fully recover. I also had the opportunity to realize that the care solution that I had been trying to make work was unsustainable: Caregiver for the morning routine, day-program mid-day during the week, trying to get a caregiver for the evening and weekends. It left me with a huge management job and no time blocks that suited what I needed to get done. So, I viewed the medical crisis as a well-hidden blessing and I committed to the new arrangement.
But about a month and a half to two months later, things started to sour.
He started resisting me leaving. I hired a companion to be with him between dinner time and bed time, so he had dedicated engagement and conversation. The other residents generally could not talk and the staff was generally people with limited English language capability
More worrying, he started to get anxious and fearful. I think it was partly the noises in the facility: The other residents sometimes cry out, etc. He talked about “mean boys” who hurt you. He started getting resistant to toileting help, probably because of the many different people involved, with different levels of care and patience.
As much as many of the staff members were sweet and liked Gary, and the managers were understanding and collaborative, I could not bear having him feeling that way and did not see a way to make it work there. I considered another facility that had more activities and an event stronger reputation. But, on the home front, I also was unsettled. Despite the company of our two dogs, the house felt very empty. Also, I was having a hard time fitting our relationship into the hours spent visiting him daily.
Mindful of what I had learned about the level of help I really needed. I decided to investigate live in care. I learned that the large agencies can cost twice as much as a facility, and you can end up getting dozens of different people sent over time. Instead, I found a small agency that represents independent care providers, but also offers the comfort of having someone who will make sure that I have coverage if my regular caregivers cannot come or cover for each other. I was able to interview several people. Since last fall I have had two wonderful young women, one 5 days per week and the other 2 days per week. They focus exclusively on Gary, his emotional needs as well as his physical care. I have the flexibility to go anywhere at any time. I am able to focus on being his wife, social secretary, cheerleader and pal. I have time DURING THE DAY to attend to administrative tasks, home maintenance, etc.
I had worried about having “strangers” in the house, in terms of privacy and security. They stay in their room when not with Gary. I worried about having to cook for everyone. They take care of their own food. I worried about insurance. I was able to add riders to my homeowner’s policy. Yes, there are things you need to work out about daily routines, etc. It is also important to invest in the relationship of respect and appreciation with the caregivers.
Things have changed a lot since last fall. Gary was fully ambulatory and talking and physically healthy then. He is now in hospice care at home. We (the caregivers and I) have worked through the adjustments together. It is wonderful to have knowledgeable, caring partners regarding all the tactical elements. It frees me to work actively with the doctors and do the research needed on the medical elements.
Your situation. What I wrote above is what I experienced and what I found that worked for us. Your own health condition may require much attention. Your husband’s symptoms and needs may be very different. Your own comfort with overseeing his care may be different, etc., etc.
There are good facilities. If you are not part of a local support group, you may consider joining. They are great sources of insight into local care facilities. You just have to be clear about the limits to what they can do for each resident, given their business and staffing models.
Just know that there are options. Take your time and pick based on a real assessment of your priorities. We are all wishing you the best as you navigate this difficult transition!
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13 Reactions@memoriestomoments
Thanks for sharing your story. There is so much learning involved on our end to accommodate this disease. I think you may be exhausted? I'm worn out just reading all the things you've done. I am sure you are an amazing person and Gary is very, very fortunate to have you in his life.
You spoke of picking a care model based on our priorities, however I feel this will be based on personal finances as well. Memory care facilities can charge over $10,000/month. This is challenging for those of us that don't qualify for Medicaid and may have challenges coughing up that $ each month.
Everything is hard, so we appreciate your wisdom.
All the best to you. 🌺
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6 Reactions@memoriestomoments Thank you so much for sharing. Can you say how much it costs to have the home care you described? Do they cook for your husband?
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2 Reactions@judimahoney
Yes to everything you said!
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2 ReactionsDear @judimahoney
Thank you kindly for the atta-girl! 🙂 The only good thing about having your spouse get early-onset Alzheimer's is that I also have been relatively young while accompanying him. I also have always had a lot of energy. Furthermore, as in the case of so many people on this site, I am fueled by love.
I have to hold back every time I post to keep from leading with a "disclaimer": I am very aware that I have done this under the luckiest circumstances: A loving relationship, a trusting and sweet husband, overall good personal health, and yes, money for help. I grew up in a household with very little money, so I have always been very frugal. Right from the start, I was appalled at what even part-time help cost. ( $40/hr times any number of hours gets really big rally fast!). We had purchased some long-term care insurance long ago but had not increased the amount over time, so I get reimbursed a flat $117 per day regardless of what I spend. It does help. My heart goes out to everyone who is facing much harder situations than mine with scant money and health problems of their own. I pray for my demential caregiver peers often.
It is such a large and growing national issue. It pains me to see where large sums go instead of going to the kinds of things that could provide caregivers with at least some respite. We should do what we can to influence policy -- in our "spare time".
One wonderful thing is that if you do have some ability to hire helpers, you meet such truly good people. A lady came to help us a few times and then had to stop for health reasons. She was so kind and nurturing. I found out talking with her later that she was doing this work as a break from taking care of her mother who has advanced dementia! Our first caregiver brought such light to our lives every single time he came. "Good Morning! How is everyone??? Good, good. Let's see what we are going to do today!" Oh, I had a few duds in there, but most have been people I came to care about and am very glad to have had enter our lives.
Warm regards headed your way.
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7 Reactions