My Parkinson's life is so confusing - this is not easy.

@sunnyduckel I’ve been using Claude AI to speak to on computer using just a few words to look up something and somehow Claude interprets what I’m trying to find the words to ask with answers and/or questions that require just a minimum of input from me. You may find it helpful somehow.

@sunnyduckel thereks a free version of Claude at Claude.com

@sunnyduckel
Thanks, and the other thing that seems to be hard to explain to people is how sometimes I can go from feeling horrible, mostly in gut area to not feeling too bad at all. I know this can be a problem for someone who does not have these mood/pain swings to understand.

Yes—well described.

@esther589
I appreciate the update. Please post with any other questions or concerns. Will you post an update after you see your neurologist?

@hopeful33250
I will 😊

@kshansen Or just like me. I am sitting here talking w/husb and suddenly hit by gut and tremor. SO FRUSTRATING.

@sunnyduckel
I know this is a reply to a month old post but today was a good example of the pains I have to deal with and how they change from time to time.

I was feeling very bad most of the day but forced my self to take the riding mower out and mow. While I'm not saying I felt great but running the mower I guess forced me to keep my attention on the task. Problem is almost as soon as I put mower away and came in the relax the gut pain was back big time. Now while reading here and replying pain level is tolerable to some extent.

It is very difficult to explain to my wife how this happens. It's also hard for me to fight through the pain and find something to distract my brain for the pain and also not try something that will cause me to stress out and make it worse.

You have my vote on this subject. Leg, foot, finger, and palm cramps continue every day. I've tried EVERYTHING! Nothing works. Balance and dizziness, especially when I'm tired. Constant adjustments of meds for constipation are needed to keep things working.
Seeing things that are not actually there, especially to my sides is very troubling.

Hello @barryl

I appreciate you sharing your experiences in this discussion group. As you probably know, daily exercises can help to improve many PD symptoms. Here is an article about how exercise is an important way to treat PD: https://www.parkinson.org/living-with-parkinsons/treatment/exercise. There is also specific vestibular therapy that can assist with balance problems.

Has your neurologist referred you to physical therapy?