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DiscussionMy Parkinson's life is so confusing - this is not easy.
Parkinson's Disease | Last Active: 12 hours ago | Replies (136)Comment receiving replies
Replies to "@sunnyduckel I know this is a reply to a month old post but today was a..."
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@kshansen I can recognize and identify with so much of what you describe. It is hard to describe to someone who is not affected the swings in how I feel day to day or hour to hour. The heat of this summer in SC has been particularly hard to deal with. The orthostatic hypotension and weakness experienced when I'm outside and doing any exertion is SO limiting. I've had to get a handicapped placard for my car so I can get my groceries from the store to my car without passing out. I know exercise is important, but some days it just seems to be too much to ask. I know that pity parties are unhelpful - so I get it out of my system and keep going. I do all I can to help myself, keep up with daily fluid intake and meds to support my BP and try to get a good night's sleep (when the restless leg syndrome cooperates). I also remember to say the Serenity Prayer: God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference. Hang in there.