Does anyone have a solution to help manage Reclast side effects?

@cherio Thank you for your post. I have read about so many people who have had such horrible side effects from taking the Reclast infusion and I totally agree with you regarding how we are not being fully informed. I am 75 years old and after being on Tymlos for 2 years, my doctor wants me to take the Reclast infusion next. After reading your post, I know for sure now that I will not get the Reclast infusion!!! This is my body and my decision.

@nana50

Is it possible that fosomax/alendronate would work for you.?

blisters, rash and ongoing pains throughout my body for 1 1/2 years. Does it ever go away??

@dannyandebbie
I had a severe reaction to Reclast which began 3 days after the infusion. Serious enough to be hospitalized. Ultimately I experienced vision loss (permanent) in my upper right eye. The diagnosis is Giant Cell Arteritis, an autoimmune disease. It's been a long road and isn't over.
JCL

@jcl75

Are you saying that the reclast brought on the autoimmune dx?

@gravity3
Yes. I was perfectly healthy three days before and the symptoms started. Reclast
did not cause an autoimmune disease. It caused the inflammation of the arteries, which is an auto immune disease. There are some legitimate studies going on which connects RECLAST and giant cell arteritis

@jcl75 I have had Many side effects from the infusion! Latest is constant inflammation of my left eye. I was prescribed a steroid drop, first time it did not work, second time it worked for about two week and now it is back, along with blurry vision. In addition to all the symptoms that I have experienced another new one is continuous electrical shocks in both legs and groin area should I move just right and / or cough. If I go to blow my nose I have to squat or the shock is instant. My endocrinologist says it is not from the Reclast and sends me to Rheumatology, who has no explanation and therefore sends me to Neurologist who again find nothing and suggested I see my Endocrinologist……I see a pattern here where some are getting wealthy and my pain remains. A note! It has been 2 years this month that I received my infusion! Hopefully in time my body will defeat this poison and I’ll start feeling better or more normal for a 69 year old male!

I had my first infusion on 6/15/26, late afternoon. They symptoms woke me up at 2:30 a.m. on 6/16/26. I could not believe how much it felt like my body was under attack. (relevant info- I've had SLE for 46 years so I am no stranger to medical discomfort/pain and have a very high tolerance).

All of my bones hurt and I started dry heaving. I was that way all day, until about 10:00 p.m., roughly. Tylenol would help a bit, but not nearly enough. I was utterly miserable.

On 6/17/26 I was tired, but only had slight pain. It was over. I will have two more doses 2027 and 2028.

@peonies65 best of luck!

I had my first infusion yesterday. Taking advice from this forum, I made sure I hydrated well (104 oz of water during the day), took a Claritin in the morning and my usual Allegra at bedtime, and Tylenol offered by the infusion nurse before the infusion commenced. I was infused over a 60 minute period, followed by additional IV fluids to flush and hydrate further. This was done at the Stanford Infusion Center in Palo Alto, CA. Top notch facility and staff.

So far, so good. I slept well but woke up with a slight headache which appears to be going away after an hour. Keeping my fingers crossed that over the next few days I’ll continue to feel good.

Glad the first one is over!