1. < Chronic Kidney Disease (CKD)
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How join support group ?

Posted by eelatt01 @eelatt01, Apr 14 7:49pm

Can I join the Chronic Kidney Disease Support group ? If so , how do I go about doing so. Thanks for any info. Ed Lattimer

Interested in more discussions like this? Go to the Chronic Kidney Disease (CKD) Support Group.

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eelatt01 | @eelatt01 | May 27 2:14pm
In reply to @gingerw "@eelatt01 Welcome, Ed! If you haven't already, please take a look at the discussion threads that..." + (show)
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@eelatt01 Welcome, Ed!

If you haven't already, please take a look at the discussion threads that talk about kidney diets. That is a very powerful thing we have in our arsenal to help us. The big things are watching our sodium, sugar, calcium, phosphorous, potassium intakes. No NSAIDs like aspirin or alleve. Tylenol okay. Modify your red meat intake. Moderate exercise and good sleep.

Often we can point to a few things that might have contributed to declining kidney function. The top culprits are diabetes and high blood pressure. Others include medication side effects, genetics, or lifestyle. Has your medical team been able to talk to you about the cause of the decline?
Ginger

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@gingerw No one has talked to me about cause of my Kidney problem. I use to have high blood pressure but that seems to be better now. It's low more often than high. I just found out I was a 3 several months ago. ,and went to a 4 several weeks ago. I don't know how long it is between 4 and 5 . I don't know that much about Kidney disease. I'm still learning, I would rather get a transplant than to go on dialysis. Although I'm 90 so I'll have a good tug of war with my Nephrologist about getting a transplant at my age. . . I do a lot of praying; for a lot of things . Did I spell that right ? I would like to be able to join a discussion group. Either chronic Kidney Disease or Transplant group, to learn more. Thanks for listening . Ed

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Ginger, Volunteer Mentor | @gingerw | May 30 5:29pm
In reply to @eelatt01 "@gingerw No one has talked to me about cause of my Kidney problem. I use to..." + (show)
Profile picture for eelatt01 @eelatt01

@gingerw No one has talked to me about cause of my Kidney problem. I use to have high blood pressure but that seems to be better now. It's low more often than high. I just found out I was a 3 several months ago. ,and went to a 4 several weeks ago. I don't know how long it is between 4 and 5 . I don't know that much about Kidney disease. I'm still learning, I would rather get a transplant than to go on dialysis. Although I'm 90 so I'll have a good tug of war with my Nephrologist about getting a transplant at my age. . . I do a lot of praying; for a lot of things . Did I spell that right ? I would like to be able to join a discussion group. Either chronic Kidney Disease or Transplant group, to learn more. Thanks for listening . Ed

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@eelatt01 Blood pressure issues are one of the top 2 underlying causes for chronic kidney disease.

Truthfully, you may have a pretty steep climb up that hill, finding a transplant center who will consider you, given your age. Do you have a living donor in mind?

You can join any discussion group! You are already a member here on Mayo Clinic Connect, and every support group offers many discussion threads. Jump right in!
Ginger

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rngobra | @rngobra | 1 day ago

I joined this group to gain information for my son in law who is a stage 4 kidney disease. Should he get more tan one consult before proceeding with the fistula surgery for dialysis?

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Ginger, Volunteer Mentor | @gingerw | 15 hours ago
In reply to @rngobra "I joined this group to gain information for my son in law who is a stage..." + (show)
Profile picture for rngobra @rngobra

I joined this group to gain information for my son in law who is a stage 4 kidney disease. Should he get more tan one consult before proceeding with the fistula surgery for dialysis?

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@rngobra Welcome to Mayo Clinic Connect! Thee are a lot of variables to consider, with dialysis. Has your son had any education on the different modalities: peritoneal, hemodialysis or home hemodialysis? If so, what is his desire? If it is peritoneal, has he been evaluated to see that he could do that? Here is a link from Renal Support Network that explains the different options: https://www.rsnhope.org/kidney-101-just-diagnosed/dialysis-treatment-options/
Ginger

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rick37 | @rick37 | 2 hours ago
In reply to @gingerw "@eelatt01 Mayo Clinic Connect is an online forum. The beauty of this, is it is available..." + (show)
Profile picture for Ginger, Volunteer Mentor @gingerw

@eelatt01 Mayo Clinic Connect is an online forum. The beauty of this, is it is available 24 hours a day, 7 days a week! We have members from all around the globe.

As you sort through discussions within a support group, no doubt you're going to find something you want to comment on, or reply to. Click on the "reply" icon and a "comment" window will open. You can then type in what you want to say. Click on the "reply" icon to the lower right of your comment, and it will be posted to the group.
Ginger

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@gingerw
Hello, I am Rick37. I joined the Mayo Clinic Site to find out more information about Chronic Kidney Disease. Information related to diet, exercise and lifestyle. I have been seeing a Kidney Doctor for 5 or 6 years. I am 74 years old and have several related issues. 1. I have had a radical ileostomy with my Colon removed about 40 years ago. I have type 2 diabetes with an A1C of 6.2
and my kidney level is 3b. I have had many dehydration episodes over the years which has contributed to make my kidney numbers get worse. Thank, Rick. I would like to join a Kidney Disease Support group. If anyone can help me get into the conversations and join a support group I would appreciate it. Thanks again, Rick37

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