Living with Neuropathy - Welcome to the group

@bustrbrwn22
Oops, I got you and Laurie mixed up, sorry about that
Jake

@jakedduck1 Thats such a sad story, Jake. I know what you mean. My son has had several near-death experiences including the time he was medi-vacced out of the north and in a coma for days. It was an awful experience.
Anyway, Funny One, I plan to be at your 108th birthday party in spirit at least! And who knows in 40 years what medical science can do for us?!! Just this month there's been a woman who celebrated her 117th, I think it was. I've
always said I want to live to be 97 and then renegotiate!

@jakedduck1 a roommate would be very helpful in so many ways for you. I hope that happens soon for less worries. The people I knew from New Jersey were pretty tough so watch out(it’s maybe a good thing, lol). You probably lived in new england at one time to appreciate the diversity. I also know of people who have specially trained dogs that can contact emergency services for help. True, they are more work to have around but they do make great companions and alert us to danger. Besides, a dog will never want to relocate as a roommate would.
Jake, I am surprised with all the technology there is not a cellular device(like a watch) that can measure your state of health condition since a seizure occurs because the neurons are misfiring. The device should also be able to contact emergency services for you in the event you cannot. In today’s world a device can handle voice commands as well i.e. if the person can talk. Voice identity by machines is common when I place calls to financial institutions. It is becoming more difficult to talk to a person; however, with emergency services it should not be a problem. I have found by answering “human” to an automated service gets me quicker to a live person.....what a pain it has become to talk to a person in a business. Today even worse with the pandemic. Usually, everything is online now.
I try to take advantage of technology to make life easier for me. When the doorbell rings I can see who it is and also talk to them from my couch. This was my remedy for not being able to go the front door quickly. I didn’t want any problems with package deliveries. Be safe. Toni

Hi Barry down under @user_che214927 Your belief in neuroplasticity to help you find relief from your neuropathy symptoms has been very encouraging to other Mayo Clinic members. Many times you have referenced and mentioned to purchase “the book”. Can you please share with us what exercises YOU specifically do and HOW OFTEN? It would be greatly appreciated and informative to others with neuropathy to see if they are able to do some of the exercises. To purchase and read the book may be a struggle as it is with me who also suffers from strabismus. I wish you well and continued success in finding answers. Toni

Hi Barry, well, I investigated ConsumerLab.com and they are legit and NOT associated w/ big pharma. Here are several sites identifying who ConsumerLab.com are. I think you'll agree many professionals rely on them for supplement information: https://duckduckgo.com/?q=who+are+consumerlab.com&ia=web. Here is a good article from the NIH that you'll like: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC521528/ Across the board most esteem them highly and think them to be legit. Not associated w/ big pharma rather use independent labs to test products. But again they present a wealth of info on a ton of other health related products and even speak a lot about the Covid-19 vaccines. Take care friend, Sunnyflower

Thanks Sunnyflower. You have put in lot of work for me anI appreciate it. However I am completely happy with my progress via Neuroplasticity and promise for the future. My diet and exercise plans are working well and at age 90,I am nil medication of any description. Good luck and go for it

@jakedduck1 @bustrbrwn22
Leonard, you are a Hoot, you crack me up sometimes. If I attend any party at age 108 it will seem lively to me no matter how dull it may seem to anyone else.😊

Jen, mostly its into the ether with the disappearing ones, unless they are thoughtful enough to do what Leonard suggests (give Colleen's contact info to someone and that person actually follows through. As in the case Leonard mentioned). Best, Hank

@avmcbellar @user_che214927 I agree it would be helpful if some of the exercises that worked were shared and how often they need to be practiced. Please?

Hi @bustrbrwn22 as for myself I did eye exercises daily for 4 months before deciding to stop. I used an app to do the exercise I planned for that day 3 times throughout the day. In the app there were 5 eye exercises total which I rotated to meet my daily schedule. Every month I increased the number of times I performed each exercise by one. I started at 3 times daily and slowly worked my way up to 6 times. I did notice an improvement where my bad eye tried to slide to match the other image. It never got there because I still had double vision. The slow reaction time increased my motion sickness. I also felt the imbalance more in my ears. I stopped so my eyes would settle in time for the surgery since my vision was not correcting. The image of the bad eye kept shifting up and down and not settling. A month after stopping the eye exercises, my ears had less pain and the reaction time of the bad eye has decreased significantly. The bad eye image has almost stopped shifting. My motion sickness has gotten better.
I don’t have an exercise program for other improvements but basically the more you practice the better your outcome. In essence you are retraining your brain to use different pathways to get to the same results. The idea is to bypass the nervous system to use healthy nerves. I use my opposite limbs to complete tasks I used to do in hopes those limbs will get stronger and perform better. I never purchased the books Barry has suggested. Instead, I found basic information online to be able to follow neuroplasticity.
I will say the website I once mentioned for VR therapy(VRxTherapy.com) has contacted me. They asked if I have a pair of VR goggles. The answer is yes. I am hoping for the next step to perform exercises(neuroplasticity) the website recommends for improving my neuropathy. Time and patience is needed to be successful with neuroplasticity. You can put your mind to it, lol. Good luck. Toni

Barry, thanks for encouraging me to do my homework which I usually do but in this case just trusted the person who recommended ConsumerLab.com to me. Keep me posted on your neuroplasticity journey. I tried it a few years ago but didn't experience any changes. Maybe I will give it another try. Certainly better than evil medications! Be well and try to behave 😉 Warmest wishes, Sunnyflower