Living with Neuropathy - Welcome to the group

@jakedduck1 is it too personal for me to ask why you say you won’t be here long?

@bustrbrwn22
Nope, not personal at all.
As often as I fall and hit my head I'm surprised I haven't bled out by now. My house looks like a slaughterhouse half the time. If I ever have Status seizures again I’m finished for sure if I'm alone. I may have a roommate from New Jersey shortly (I hope). The nut loves to cook, imagine that.

You’re welcome Laurie @artist01. Thank you. I always have helped my elders out of respect as long as they want the help. I understand the current technology and try to help them feel less isolated because of the virus. More recently, I have finally been able to video chat with an older woman who I have known for years. I give her credit for her abilities to follow my directions. She is happy to be able to see me now. Before we phoned each other. Using technology, I have also figured out a way to tutor high school students. On the screen they can follow my notes as I write. They do the same to show me problems or questions. It works out well remotely. In the beginning I tutored in person at the high school but with the pandemic I didn’t want to take the chance.
Laurie, sometimes you may be able to see the items available for shopping by either going to the store’s website or by downloading their app. I have an Ipad which makes it much easier. I bring my Ipad with me after creating my list. The app tells me in order in which aisle to find my listed items. It makes shopping very quick. Usually in 30 minutes I am done. My husband loves it. He follows it too to get the items into the cart.
I do the same for my mother who has a grocery store within short walking distance for her. We video chat so I can tell her where to find the items using her cell phone.

The more you use the internet on your device the easier it will become. No worries. You are doing well to earn a diploma, lol.

Wow, you are aware of the challenges with the double vision. I am glad you finally found to overcome it. My double vision is a deficit from the AVM. I had to figure that out for myself too. I did see 2 neuro ophthalmologist and put the information together.
I have to be cautious to not fall. It does slightly improve with time. I am hoping it finally settles before the surgery. I have no choice but to wait for 100% medical coverage starting 2/1/2022. So I don’t mind. The outcome will be better in the long run. Sometimes I cover my bad eye to give myself a break. It helps temporarily.
Keep on practicing with your device! I believe the frozen chocolate covered banana are called Dianas Bananas Baby Bananas, dark chocolate. I hope your grocery story carries it. The popsicles are called Chloe’s Dark Chocolate Pops. Hugs, Toni

Carob? not familiar with that.
Not opposed to trying it UNLESS it's similar to that “VILE” dark chocolate. For people who can endure that choke-inducing poison known as coffee I can understand how they can think dark chocolate might not be too bad. Of course they are wrong but you just can't figure some people. Are you listening Mary @imallears, lol
Take care,
Jake

@bustrbrwn22
Nope, not personal at all.
As often as I fall and hit my head I'm surprised I haven't bled out by now. My house looks like a slaughterhouse half the time. If I ever have Status seizures again I’m finished for sure if I'm alone. I may have a roommate from New Jersey shortly (I hope). The nut loves to cook, imagine that.

You are never weak or complaining for voicing a question, a concern, or fear to your medical provider about your health. If ANY medical provider makes you feel that way about YOU or your CARE, @bustrbrwn22 report them immediately to your state medical board, and find another provider as soon as possible.
Your very life may depend on it... not only mental health, but physical health.
I’ve had family members nearly killed from this neglect and blatant dismissive type of care— a brother who ended up at the Mayo with over 200 ulcers throughout his digestive tract and a mother who almost died from error upon error of Prescription orders in the cardiac unit because the doctor was too lazy to study her chart.
I ended up SLEEPING next to her bed and double checking every single medication order prior to being given by the nurse after her double stent placement just so I knew she would get to go home. I ended up stopping a glyburide order (she’s not diabetic), a tamoxifen order (still pissed about that one), and fixing her thyroid dosage that they calculated wrong when switching to their available brand.
YOU are the quarterback of your body. You are the one who determines if the person treating it actually respects it or not. Respecting you is one thing, make sure that the person has taken the time to get to know your case and your complaint enough that they respect THAT MORE.
If you don’t know why they are giving you a medication, ask them! Then follow with that information with a blind question to your pharmacist. That means ask your pharmacist something like: Can you tell me what this medication is for? I was really too nervous today at the doctor’s office to remember anything If the information doesn’t match up, ask the pharmacist and then the doctor. Find out what you are taking and why, the side effects and precautions to watch for.
DO YOUR RESEARCH. Nothing you take for a disease is natural for your body even if it’s “natural.” It’s a foreign body and your body MAY NOT LIKE IT AND REJECT IT in ways you won’t like.
When YOU ARE SATISFIED, THEN take your medicine. The times of the blind leading the blind are over. Patients are active participants in their care now.
I’ve told you this before, @bustrbrwn22 you are the one who matters. It’s YOUR body. You are not an experiment.

@sunnyflower @jakedduck1
Wow you guys, I am starting to feel like I am at my high school reunion with all the 68 year olds here, of which I too am one. (I miss Eisenhower 😊) Best, Hank

@faithwalker007
Be careful getting prescriptions from nurse practitioners. After I demanded she check with the doctor she came back and reluctantly admitted I was right. You should tell doctors you may have had Stephen Johnson Syndrome. I believe antibiotics cause the most most SJS cases.
Take care,
Jake

@sunnyflower
I don’t remember exactly what meals I had but I stopped all soft drinks ice cream. Haven't had donuts in 3 years. No frozen meals or any packaged foods & no fast foods and only went to restaurant on my birthday except when my friend brought me something which wasn't often. Very few canned foods, beans for salad, tomato sauce (when the girl cooks for me she uses fresh tomatoes) garbanzo's can't think of what else. Had fresh whole foods that had to be cooked. Had beans & lentils (because of iron content) & salads. Lots of veggies. Of course I didn't give up any of the 5 most important food groups, Candies cookies cakes pies and pastry but did cut back on sweets, that was the hardest part. I try to get plenty of iron since I donate blood products 2 and sometimes 3 times a month. But I decided to eat right except for candy and not to gain weight again. My doctor said I had to go to the gym and her office called every week To make sure I had been there every day. I was also ordered to see a nutritionist. She wanted me to have 1 strand of spaghetti and call it a meal. Looks like I'm getting a roommate, a guy who loves to cook. He must be as crazy as Florida Mary's (@imallears) son.
congratulations on your weight loss that’s quite an accomplishment. 90 pounds is the most I’ve ever lost at one time, one long drawn out time that is. 2 years I think it took.
Take care,
Jake