My son is getting IVIG treatments for CIDP...has anyone had Plasma

Hi - there are many different variants within the CIDP family so it's probably not straightforward to say yes or no to answer. I had steroids, then IVIG, then plasma. Ultimately none worked and I ended up with Retuximab. But the standard sequence of treatment is probably what they are doing. I had 4 out of 5 plasma transfer sessions before their diagnosis of the specific type of CIDP "family member" I had. The IVIG may well solve the issue so hang in there, don't jump ahead. Easier said than done, I know. Best of luck.

My husband has nurofascin 140 positivity & he had 2 rounds of ivig before the nurofascin positivity test, they didnot help him much , but they have planned a plasma exchange also called plasma pherasis for him at the end of this month because for him the auto immune condition kept prigressiing without any doctor testing him for nurofascins for more than a year. What is your son getting the ivig for? I think they will first do a plasma pherasis to remove the antibodies from the blood and then give him ivig

They arent sure what he has but they think its similar to CIDP

Sent from AT&T Yahoo Mail for iPhone

@tanvisingh2007 mine is nf155+

Hi,
I have CIDP. Common CIDP. I have tried every treatment available, or nearly. Plasmapheresis is a rather targeted treatment that removes plasma (b cells) from the blood. Usually performed with a central line, I've tried peripheral as well. It's done over a period of 5 consecutive days. That's the absolute maximum targeted dose in order to give the immune system a "clean slate". Then you wait. Some times it shows improvement in certain symptoms or an overall positive effect. It may happen while you're undergoing plasmapheresis treatment or up to 2-3 weeks post treatment. That has been my experience. Your neurologist should be able to give you his response on the possible effects of plasmapheresis for your particular case. CIDP tends to be very case sensitive. Overall, plasmapheresis tends to give good, rather immediate results and works for many. Typically. neurologists will start treatment with steroids then move to plasmapheresis, then IVIG, then Rituximab and so on. Wish your son the best while undergoing treatment and hope they come up with a definitive diagnosis so that they can apply proper treatment. That would be helpful all around. Patience and a positive outlook. The doctors will usually find what works and will ultimately be able to help him. It could be a single line treatment or a combination. All the best.