My son is getting IVIG treatments for CIDP...has anyone had Plasma

Hi - there are many different variants within the CIDP family so it's probably not straightforward to say yes or no to answer. I had steroids, then IVIG, then plasma. Ultimately none worked and I ended up with Retuximab. But the standard sequence of treatment is probably what they are doing. I had 4 out of 5 plasma transfer sessions before their diagnosis of the specific type of CIDP "family member" I had. The IVIG may well solve the issue so hang in there, don't jump ahead. Easier said than done, I know. Best of luck.

My husband has nurofascin 140 positivity & he had 2 rounds of ivig before the nurofascin positivity test, they didnot help him much , but they have planned a plasma exchange also called plasma pherasis for him at the end of this month because for him the auto immune condition kept prigressiing without any doctor testing him for nurofascins for more than a year. What is your son getting the ivig for? I think they will first do a plasma pherasis to remove the antibodies from the blood and then give him ivig

They arent sure what he has but they think its similar to CIDP

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