Anyone been to Mayo Clinic for help with the after effects of Whipple?

Posted by jak365 @jak365, May 13 9:30am

Has anyone been to the Mayo Clinic for the after effects of whipple etc? I have all of them cholangitis infections, constant nausea and uncontrollable diabetes. Looking for an approach where drs get together and discuss-

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

jak365 | @jak365 | 2 days ago

In reply to @tomrennie "@jak365 How are you feeling? Is your after care improving?" + (show)

@tomrennie kind of you to ask. Im better as i totally changed my diet over the last week. Total gastroparesis diet which means no fresh friut veg fiber or fat. Ick. Plus now im on reglan and thc every meal. Not sure mayo is right for me and oncologists telling me theyve never had a patient who was 5 yrs out with all my symptoms. One foot in front of the other. How about you?

Turkey, Volunteer Mentor | @tomrennie | 1 day ago

In reply to @jerryc131 "@tomrennie It went well. The NP said Bruce was doing very well and that all the..." + (show)

@jerryc131 I am glad that it went well and hope the same is true for June 2nd. Please let us know how it goes?

Turkey, Volunteer Mentor | @tomrennie | 1 day ago

In reply to @jak365 "@tomrennie kind of you to ask. Im better as i totally changed my diet over the..." + (show)

@jak365 Dietary changes can help. It's great that they are working for you. So you went to Mayo and met with an oncologist? Was a moving forward strategy discussed? I am doing well. Thanks for asking.

sara53 | @sara53 | 1 day ago

I had all the same kinks as your husband after Whipple and my surgeon said no to Creon, too. However, her PA prescribed it, saying it was worth a try. My gastroenterologist also said we could give it a try, but did not seem eager to prescribe it. I haven’t gotten a clear answer about taking Creon, so may depend on how each person reacts to Whipple. I don’t know if there is a way to check which digestive enzymes are deficient after Whipple.

Colleen Young, Connect Director | @colleenyoung | 1 day ago

In reply to @jak365 "@tomrennie kind of you to ask. Im better as i totally changed my diet over the..." + (show)

@jak365, should you wish to get a second opinion from Mayo Clinic pancreatic and GI specialists, you can submit a request here: https://mayocl.in/1mtmR63

It sounds like you may have found some answers through diet. I think you might appreciate joining this discussion. It's not Whipple surgery specific, but fellow members share many tips.
- How do I eat after digestive tract surgery?https://connect.mayoclinic.org/discussion/how-do-i-eat-after-digestive-tract-surgery/

I suspect you'll also have some insights and tips to share with others.