Anyone been to Mayo Clinic for help with the after effects of Whipple?

Interested in what feed back you receive. My husband is 1 month post Whipple. Sick to his stomach seems every other day. Very tired / weak.

I hope for him it’s just from the surgery and things need to settle and will improve. If not you have to let oncologist know. Also as for diarrhea- my nutritionist helped me get bile acid absorbers (Welchol) which I take along with creon. I also read that the part of the duodenum that absorbs iron is cut out in whipple so need to make sure he’s not anemic.My nausea and other issues etc are plaguing me 5 yrs out.

Jak365
I've had most of my treatments at Mayo Rochester and that included after surgery care. They were and are terrific.
Did you have your surgery done there and if so, aren't they already providing post-surgical care? And if not, you might still want to reach out to them. One of the benefits of being treated there is excellent coordination of care.
Good luck,

That’s what I need the coordination. I did not get my treatment there I was living in NYC and got it at Sloan Kettering. Great for the treatment. Not great at the aftercare and as I said the collateral damage from treatment has been extreme for me.Thanks for that information!

My husband is just day 13 post Whipple. He did remarkably well. He came home day 4 after surgery. He has been doing well at home sans the eating. I’ve been told this is perfectly normal, but he has been having some diarrhea and loose stools so of course he is losing weight. I’m working like crazy trying to find what works food wise. He’s not taking anything as yet.
We have a televisit with UVA Monday and will address this and the Creon and its Nutrients I read about here.
Thanks for this site!

@jerryc131 does your husband take any anti nausea meds? My dx was stage 1 PanCan. I had chemo 6 times in 3 mos then Whipple & 6 more chemos in 3mos post op. I had no issues with nausea. I believe that may be because I had a cholecystectomy in'84 & gastric bypass in '05. I remember I briefly had nausea after both surgeries but icy cold protein smoothies I made (at home not the store-bought kind) helped with my nausea back then. I am sorry I wish I had some other helpful advice but I was told nausea after stomach surgery was normal! I would call your oncologist and ask for an anti nausea med and a consult with a nutritionist. She helped me more than the dietician who seemed to be more concerned with measuring food & calories instead of suggesting easily digestible forms of protein. Also I have to take vitamins and I find the gummie form of D2 D3, B12 and Vitamin C are so much easier to digest than pills and capsules. Ther are sugar free options too. Best of luck.

@jerryc131 How did your visit with UVA go on the 18th?

@jak365 How are you feeling? Is your after care improving?

@baravelli
Husband has not ever been nauseous, just not hungry and eating very little. Since my post, his appetite has increased some. As far as what to eat, UVA’s protocol is to eat whatever he can tolerate! So it’s a daily guessing game.
I hope you are faring well!

@tomrennie
It went well. The NP said Bruce was doing very well and that all the kinks were normal, I. e. lack of hunger and multiple daily bm’s. She said no to the Creon.
We go back June 2 for post-op and consultation with oncologist.