What if others say they're afraid you'll have a seizure?

@randallshields56 ps, didn't see it coming back to back type of event, but had to help my daughter through one of her seizures. Was a long day and night around here. Have a blessed day today 🙏 everyone 🙏

@randallshields56 ps, didn't see it coming back to back type of event, but had to help my daughter through one of her seizures. Was a long day and night around here. Have a blessed day today 🙏 everyone 🙏

Doctors appointments today, their additional med now is another seizure med. Not what I wanted to hear. But going to follow their lead, i have a good neuroscience doctor that works well with my daughter's observations.

@randallshields56 I appreciate how frustrating this process can be, but having a neurologist who is committed to lowering the incidence of your seizures can be a very good thing. I'm not sure if you do this, but I have kept a seizure journal whenever I start a new medication or have an adjustment to my dosage. I go one step further and also track all my medications just to be sure there are no unintended consequences.

For example, my PCP provided a new medication for another condition, which in turn had a profound impact on my seizure incidence.

welcome to the group, telling someone you haven't seen in years can have many outcomes , my friends would ask if thy needed to do anything if while with me and i would let them know just as i would let a family or close friend know. right up front. that's how my friends know me and wouldn't want less. if you are really worried about it have it out as soon as able to stave off future issues or more. course that is my opinion, i just don't like others being shocked unnecessarily if i can help it. a good friend would take it however you put it to them.

another thing i have learned from the seizures both myself and daughter get is we both have different triggers. hers are usually because of too much going on in the brain and getting overheated. hers didn't start till she had her two kids. mine was from a tumor and too many head traumas .with bringing family on board was tough, but every obstacle i improved on regardless if i considered it a win or not. it was to them. i knew i was being watched 24/7 but they learned with me that i would let them know the minuet i was not feeling right. mad a big difference after a while, only one condition, had to have my phone with me always. what set mine off was too much input to the brain at a time. made me think to hard, i taught them patience and it paid off for all of us. now i think of what i want to say before i say it, makes good practice for speaking to anyone.

@randallshields56 Thank you for sharing your information regarding triggers. My seizures were started 20yrs ago when I was 45, after a TBI caused after a DV assault. I am not sure about triggers as my seizures jut happen with no warning. After you talking about too much input into the brain causing the trigger, that could be part of what happens to me too. I can go 2 months without a seizure, which usually happen around the same times of the month.

@laura1961, Laura if they happen around a certain time, it's quite possible you can figure out before hand by a couple days and reduce your stress knowing that you have plans in place for reducing symptoms like box breathing. I recently started using it because of the added stress of late and it has helped me with fucus and relaxing my over active mind. Hope this helps. Have a blessed evening

@randallshields56 Thank you for sharing your experiences, & yes I too have a lot going on in my brain. I need to slow down & try to reduce the stress going on in my life. Having seizures & Osteoporosis is enough stress for anyone to have to deal with. I was trying to look after my mother at home for many years, who was left in pain 24/7 after a Dr damaged her internally after removing her gallbladder. I had to put Mum into a home after she had a stroke in 2022 which I was so pleased had stopped the pain. It unfortunately left her in a wheelchair & with Alzheimer's/Dementia also. I have to limit my visits but call her once or twice daily.