Anyone else have multiple autoimmune diseases?

Posted by noelcs @noelcs, Sep 28, 2025

I have Addisons, Hypothyroidism, Sarcoidosis, Myasthenia Gravis and Dermatomyositis. Also, Kidney disease 3a, and liver disease. Good news is……I don’t seem to have the worst. Are scenario of any of them. My biggest problem is the lungs. I still golf some and the breathing sometimes interferes. Overall, I consider myself lucky that I’m still here……because I’ve had some close calls.

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taylor05 | @taylor05 | May 8 6:51am

In reply to @becsbuddy "@taylor05 I wish you the best as you get your chemo and radiation and sending a..." + (show)

Thank you for your response..

katrinamcd | @katrinamcd | May 8 8:19am

Yes, I have PMR, ITP, Psoriasis and stge 3a CKD.

rdf56 | @rdf56 | May 9 7:35am

Systemic lupus, Rheumatoid Arthritis, Colitis, Secondary adrenal insufficiency (severe) and uveitis occasionally crops up. RA seems to be the worst issue because I stay away from the sun due to lupus. But honestly, it all sucks and I am never pain free. I walk like a toddler, my energy level is pathetic, I eat only once a day. I'm 69 years old and the whole autoimmune thing began in my teens when I was a lifeguard.

jlo5544 | @jlo5544 | May 9 4:39pm

In reply to @rdf56 "Systemic lupus, Rheumatoid Arthritis, Colitis, Secondary adrenal insufficiency (severe) and uveitis occasionally crops up. RA seems..." + (show)

@rdf56
oh my gosh I so sorry for you!
I have similar problems with pain so I know what a struggle it can be just to get through the day!
I hope you have some strategies and options for self care which take the load off .

lni888 | @lni888 | May 9 9:13pm

I have GCA and PMR and now I may have Sjögren’s also. I just posted a message asking for advice about Sjögren’s at https://connect.mayoclinic.org/discussion/swollen-parotid-glands-i-may-have-sjgrens/

Alta Net | @altabiznet | May 10 10:54am

In reply to @rdf56 "Systemic lupus, Rheumatoid Arthritis, Colitis, Secondary adrenal insufficiency (severe) and uveitis occasionally crops up. RA seems..." + (show)

@rdf56

Have you tried biologics like adalimumab, or tocilizumab, or rituximab?
What is your therapy for all of these condition?

rdf56 | @rdf56 | May 10 2:11pm

I've been on Enbrel, Humira, Cimzia, Actemra, Rinvoq and currently, Xeljanz which is augmented by Leflunomide. I have to take daily steroids for the adrenal thing. I had 32 years on Plaquenil, but had to stop that for retinal toxicity.

ruralgal76 | @ruralgal76 | May 10 2:39pm

In reply to @rdf56 "I've been on Enbrel, Humira, Cimzia, Actemra, Rinvoq and currently, Xeljanz which is augmented by Leflunomide...." + (show)

@rdf56 It’s frustrating with trial and error… I am on orencia infusions and I can really feel the difference immediately! Who knows: everyone is different that’s for sure. Oh and I’ve been on prednisone for 20 years: my bones show it!! I’m 76… best wishes to you

helixing | @helixing | May 10 2:42pm

Yes. Autoimmune diseases come in pairs or multiples. I have 4

judyresnick | @judyresnick | May 10 7:42pm

In reply to @rdf56 "I've been on Enbrel, Humira, Cimzia, Actemra, Rinvoq and currently, Xeljanz which is augmented by Leflunomide...." + (show)

@rdf56 my daughter has also been in steroids at 59 it’s her entire adult life. Bones. Teeth. Hair. Awful

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