Anyone else have multiple autoimmune diseases?

Posted by noelcs @noelcs, Sep 28, 2025

I have Addisons, Hypothyroidism, Sarcoidosis, Myasthenia Gravis and Dermatomyositis. Also, Kidney disease 3a, and liver disease. Good news is……I don’t seem to have the worst. Are scenario of any of them. My biggest problem is the lungs. I still golf some and the breathing sometimes interferes. Overall, I consider myself lucky that I’m still here……because I’ve had some close calls.

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Profile picture for ptz71 @ptz71

@taylor05 great to read your post this morning! My husband James is starting to find balance between meeting my needs while continuing to make time and find energy for his own. I realize now how 40+ years of marriage interrupted by my roller coaster health has shaped us, made us stronger and will guide us in these "golden years" ! Lol!
My best thoughts are with you today! Hope there are moments of peace in the storm of your life, and may you take comfort (as we all do) in the support and open discussions we have here!

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Thank you for your response. I'll be praying for you.. I am just
starting this week the cancer treatments. Chemo and radiation plus after
those are done another kind. Such a long haul for all of us. You take
care of yourself in this unplanned journey that I know you didn't want!!!
Hugs to your hubby.. I and James, my husband have 47 years married. It
is good we are very close to each other I'm sure like you are.. 😊

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Profile picture for taylor05 @taylor05

Thank you for your response. I'll be praying for you.. I am just
starting this week the cancer treatments. Chemo and radiation plus after
those are done another kind. Such a long haul for all of us. You take
care of yourself in this unplanned journey that I know you didn't want!!!
Hugs to your hubby.. I and James, my husband have 47 years married. It
is good we are very close to each other I'm sure like you are.. 😊

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@taylor05 thank you for your prayers! I will pray for you as well, and that you and James continue to be blessed with moments of grace during your upcoming treatments!

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Profile picture for taylor05 @taylor05

@becsbuddy
I have a very hard time being positive. I've got sjögren's syndrome, Sleraderma, Raynouds,skin cancer thats always being treated somewhere on my face and head. I've so many symptoms that are always so busy on me. Pain is number 1, I've Fibromyalgia too. I am being treated for Cancer now in three places. 2 places in my left lung and it was deflated totally and full of cancerous fluid. They just removed the fluid off my lung and its starting to inflate again. Coughing terribly and getting sick. I'm weak and I am miserable 😭. It's what I want to do a lot , but I don't. I try to keep postive as they start chemo and radiation next week. I have pain in my left jaw to my ear from sjögren's. It's the salivate glands that are inflamed in there. I pray that stops soon! My other place of cancer is in my pelvic area in the middle of a lot of blood vessels and they can't operate on either of my cancer masses. They can only kill them. I'll be having chemo for a long time along with maintenance I'm sure. I've had 22 operations already and really don't want anymore ! Having Connective Tissue Disease can cause cancer 4x higher risk than another. I've had many blood vessels break in my brain and cause ischemic strokes in my hemispheres. I take meds like I have a heart issue. No high BP and my heart is fine so far. They can't stop them really. I have been lucky to not have had any in a year now though. I have a Neurologist and Ruymatolgist at John Hopkins I live about about 2.5 hours away from them , so not bad drive. They are the best around. I also have an oncologist there, but doing treatment for cancer where I live with his instructions being done. You take care!!!

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@taylor05 I'm sorry you are going through this. Think of healing energy running through you as you go for treatments. 🙏

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Profile picture for nanied @nanied

@taylor05 I'm sorry you are going through this. Think of healing energy running through you as you go for treatments. 🙏

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@nanied
Thank you and you too!!

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Profile picture for ptz71 @ptz71

@lmpa65 yes! Found that the complaining/agonizing path i chose didn't serve me well. Prednisone, its effects both useful and not so much, endured as well! Yet here we are finding joy in little things, days which give us hope, friends/family/medical support, spiritual support....alive with each new day in whatever way it comes despite our mixed-up yet functioning bodies!
Keep it up, i wish you well!

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@ptz71 I really think you can have just one autoimmune disorder. If you have one, you have multiple. I agree, learn to live with them. I recently started a journal and titles it “Things that make me happy each week.” I try to write in it each day. Some days it may be only one thing, like “I heard the cardinals calling to each other today”, or “I was able to work in my garden today.” Other days it may be more than one. When I am feeling down, I go back and read these simple pleasures.

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Profile picture for ndough @ndough

@ptz71 I really think you can have just one autoimmune disorder. If you have one, you have multiple. I agree, learn to live with them. I recently started a journal and titles it “Things that make me happy each week.” I try to write in it each day. Some days it may be only one thing, like “I heard the cardinals calling to each other today”, or “I was able to work in my garden today.” Other days it may be more than one. When I am feeling down, I go back and read these simple pleasures.

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@ndough yes! I do this as well, and isn't it a great tool for reminding ourselves that in the end, all of those moments we are enjoying our lives will carry us when we are hurting, discouraged or unsure of the next minute....thanks for sharing, good advice especially for our select and "chosen" population! May you have many rich and rewarding experiences to recall during the difficult times.

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Profile picture for ndough @ndough

@ptz71 I really think you can have just one autoimmune disorder. If you have one, you have multiple. I agree, learn to live with them. I recently started a journal and titles it “Things that make me happy each week.” I try to write in it each day. Some days it may be only one thing, like “I heard the cardinals calling to each other today”, or “I was able to work in my garden today.” Other days it may be more than one. When I am feeling down, I go back and read these simple pleasures.

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@ndough I meant to say, I really think you CAN’T have just one autoimmune disorder.

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Profile picture for Becky, Volunteer Mentor @becsbuddy

I really owe everyone on the discussion group a giant thank you. Thank you for having positive attitudes throughout your good days and bad ones. I really needed to hear you joke and say, “life is good! What are a few more AI diseases!” I’m going to set a new goal for myself: to work on my attitude every day! Becky

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@becsbuddy My spirit just crashed today but just as quickly came back up as I read all the positive comments! And I’ll keep on working. I went to a balance class today and then walked for 1.5 miles. I’ll just plan to keep it up!

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Profile picture for ptz71 @ptz71

@angus100 yes, autoimmune diseases, the gift in many guises that loves to share...
Glad to know you're doing your best to thrive. I too have multiple diagnoses, newest is Giant Cell Arteritis. Also, age 71, determined to live til my last breath! My advice? Live in the present, continue learning and recognize every day as the gift it truly is....

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Thx for your hug! Always helps to know we're being heard, right?

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Profile picture for ptz71 @ptz71

@ndough yes! I do this as well, and isn't it a great tool for reminding ourselves that in the end, all of those moments we are enjoying our lives will carry us when we are hurting, discouraged or unsure of the next minute....thanks for sharing, good advice especially for our select and "chosen" population! May you have many rich and rewarding experiences to recall during the difficult times.

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Thx, don't you agree this is a supportive group?

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