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Does anyone have Ocular neuropathic pain
Hi, I am wondering if anyone has been diagnosed with ocular neuropathic pain. It seems like the condition is just recently being recognized and there are not a lot of known evidence-based treatments for it.
I’ve heard that some migraine treatments can be helpful for this condition. I’m currently in the process of trying to get Botox for migraine prescribed and approved. Has anyone tried this?
Thanks for sharing any advice, experiences, or encouragement you may have regarding this condition.
I feel alone, like I am the only person my age with severe dry eye that has led to this condition. (I’ve been dealing with treating severe dry eye for at least 5 years and I’m 40 now).
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ı recently got diagnosed with this (i am 18) i got botox treatment for nerves behind my eyes.It didnt work for me but if your pain is caused by nerves behind your eyes i am sure it will work!
And i feel alone too because i am too young for this stupid pain and i couldn't find someone my age too :')
@tubaozkocc thanks for that info. I’m interested in Botox for this but have a bit of a needle phobia so I’m not sure how well I would do.
So sorry to hear you are experiencing this kind of pain especially at a young age. Do they know the cause of the pain? Is it secondary to dry eye?
Do you have any other tools to help manage the pain?
Thanks for your reply and take care.
@ashleyharris728 I also use medication for neuropathic pain, but it doesn't work. I also used eye drops for dry eyes for a long time, but it had no effect. I think you're luckier than me, so Botox and medication will work for you.
@tubaozkocc hang in there. Have you tried more out of the box treatments for dry eye-like conditions like Oxervate, Lacrifill, IPL, autologous serum tears? Tyrvaya? Which drops have you tried for dry eye? Just trying to throw out every option I’ve heard of in case something sounds appealing for you to try.
This condition really takes a toll on mental health so if you think therapy could be helpful for you, please do seek out a therapist that can help you manage pain. In addition to whatever you may need in terms of antidepressants etc.
@ashleyharris728 sounds like the same things I have tried. I have neuro keratitis from an eye surgery. The Oxervate did provide some lasting improvement, taking the serum drops now to soon tell about results. What did you have success with with?
@ashleyharris728 I have tried cyclosporine drops, autologous serum, and steroid drops.And lots of teardrops...
I am going to a therapists rn i hope it helps
I am on pain medicine right now for a back issue and I don’t feel my eye issue. Sometimes you need to try alternative treatments. The brain definitely affects your eye pain.
@edie2716 I am trying gabapentin for the pain, not sure if it is helping. I’m sensitive to meds so it’s hard for me to tolerate the sedation associated with gabapentin but I want to give it a reasonable try.
@tubaozkocc I hope so too! I know some people find the cognitive strategies effective for pain management. Good luck to you and hope you find some relief.
@edie2716 I find punctal plugs helpful. I am going to ask about lacrifill next time as I’ve heard they are superior to regular plugs.
Meibo is good for symptomatic relief for me.
I take Xiidra, not sure if it helps. Same with fish oil pills.
Otherwise a warm compress, avoiding wind, and I got a pair of glasses with tinted lenses to help with photophobia.
Oxervate was not approved by my insurance. Good to know it worked for you somewhat!