Anyone else have multiple autoimmune diseases?

@ndough yes! I do this as well, and isn't it a great tool for reminding ourselves that in the end, all of those moments we are enjoying our lives will carry us when we are hurting, discouraged or unsure of the next minute....thanks for sharing, good advice especially for our select and "chosen" population! May you have many rich and rewarding experiences to recall during the difficult times.

@taylor05 great to read your post this morning! My husband James is starting to find balance between meeting my needs while continuing to make time and find energy for his own. I realize now how 40+ years of marriage interrupted by my roller coaster health has shaped us, made us stronger and will guide us in these "golden years" ! Lol!
My best thoughts are with you today! Hope there are moments of peace in the storm of your life, and may you take comfort (as we all do) in the support and open discussions we have here!

@ptz71 I really think you can have just one autoimmune disorder. If you have one, you have multiple. I agree, learn to live with them. I recently started a journal and titles it “Things that make me happy each week.” I try to write in it each day. Some days it may be only one thing, like “I heard the cardinals calling to each other today”, or “I was able to work in my garden today.” Other days it may be more than one. When I am feeling down, I go back and read these simple pleasures.

@taylor05 you will be in my heart today! Your struggle is real, and thank you for sharing your story. Chronic illnesses and pain are vastly misunderstood, and our endurance and strength tested in more ways than we could ever have guessed.
Continue your path, this journey, knowing we share your pain and confusion. Only those who experience such tests, treatments and chaos (hopefully their medical team/friends/family too) can even begin to comprehend mentally, much less physically.
My teaching hospital is a 2 hr. drive. The 4 hour trip and tests, etc., is draining. Yet I am so blessed and grateful for the six Specialty areas who organize and work together to provide my care. Also my supportive spouse, he's a trouper, these long years of illness shaping our lives so unexpectedly.
May you feel at least a brief moment of peace in the midst of your day today!

Thx for your hug! Always helps to know we're being heard, right?

@ndough yes! I do this as well, and isn't it a great tool for reminding ourselves that in the end, all of those moments we are enjoying our lives will carry us when we are hurting, discouraged or unsure of the next minute....thanks for sharing, good advice especially for our select and "chosen" population! May you have many rich and rewarding experiences to recall during the difficult times.

Hello all; I have Graves Disease, Primary Biliary Cirrhosis, Temporal Arteritis, Psoriasis and Psoriatic Arthritis. I never drank alcohol, so none of my doctors thought to test me for PBC until I was stage 3/4 cirrhosis. :\ I’ve been pretty stable but the medication I’ve been taking for PBC is no longer being manufactured. Other manufacturers make a similar drug but when I took my first pill, I experienced an extremely rare side effect, presumably related to one or more fillers in the drug-the side effect was acute pancreatitis-so they switched me to the one I’m currently taking. It was successful and I’ve been on it for over 5 years with no issues; but there are only 44 viable pills by my current manufacturer left on the planet and I’m terrified to try another manufacturer because of the experience I had with the prior manufacturer! Ugh. Oh well…Biting the bullet in 22 days…comforting to know that at least I’m not the only person on the planet with multiple autoimmune disorders!

@lisa1340
I have many , but not what you have. I'm sorry your having a very hard time... I am getting a Ruymatolgist Monday appointment at John Hopkins as the one I have now doesn't really do anything. I go for pulmonary test and heart check for all valves pumping and open. Forgot name. I do that. I've had several ischemic strokes and struggle to find words I know.. aggravating! I don't have High BP nor do I smoke. I do have antiphospholipid syndrome, Sleraderma and sjögren's plus Raynouds. I have lung cancer stage 3 maybe 4 because its manastisised?? They can't get to a active area that is 2.5 mm in size to biopsy as it's in the middle of a bunch of blood vessels.. I have to wait and let radiation and chemo work on all. Hopefully will disappear with that. Lung cancer is bad in the lung its 4.5 mm and the node on outside of lung same. They aren't operating to remove anything. The meds will make them go away I'm told. I'll be seeing

Hello all; I have Graves Disease, Primary Biliary Cirrhosis, Temporal Arteritis, Psoriasis and Psoriatic Arthritis. I never drank alcohol, so none of my doctors thought to test me for PBC until I was stage 3/4 cirrhosis. :\ I’ve been pretty stable but the medication I’ve been taking for PBC is no longer being manufactured. Other manufacturers make a similar drug but when I took my first pill, I experienced an extremely rare side effect, presumably related to one or more fillers in the drug-the side effect was acute pancreatitis-so they switched me to the one I’m currently taking. It was successful and I’ve been on it for over 5 years with no issues; but there are only 44 viable pills by my current manufacturer left on the planet and I’m terrified to try another manufacturer because of the experience I had with the prior manufacturer! Ugh. Oh well…Biting the bullet in 22 days…comforting to know that at least I’m not the only person on the planet with multiple autoimmune disorders!