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Anyone else have multiple autoimmune diseases?
Autoimmune Diseases | Last Active: 3 days ago | Replies (147)Comment receiving replies
Hello all; I have Graves Disease, Primary Biliary Cirrhosis, Temporal Arteritis, Psoriasis and Psoriatic Arthritis. I never drank alcohol, so none of my doctors thought to test me for PBC until I was stage 3/4 cirrhosis. :\ I’ve been pretty stable but the medication I’ve been taking for PBC is no longer being manufactured. Other manufacturers make a similar drug but when I took my first pill, I experienced an extremely rare side effect, presumably related to one or more fillers in the drug-the side effect was acute pancreatitis-so they switched me to the one I’m currently taking. It was successful and I’ve been on it for over 5 years with no issues; but there are only 44 viable pills by my current manufacturer left on the planet and I’m terrified to try another manufacturer because of the experience I had with the prior manufacturer! Ugh. Oh well…Biting the bullet in 22 days…comforting to know that at least I’m not the only person on the planet with multiple autoimmune disorders!
Replies to "Hello all; I have Graves Disease, Primary Biliary Cirrhosis, Temporal Arteritis, Psoriasis and Psoriatic Arthritis. I..."
@lisa1340 Welcome to Mayo Clinic Connect! I’m glad you’re here! I’m so sorry you had a negative reaction to one of your medications. How scared you must have been! Have you talked to a pharmacist to see what help they can give you ? They may know of another case like yours and be able to talk with the manufacturer. Maybe they could do an ingredient comparison to maybe find out what you reacted to. Worth a try!
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@lisa1340
I have many , but not what you have. I'm sorry your having a very hard time... I am getting a Ruymatolgist Monday appointment at John Hopkins as the one I have now doesn't really do anything. I go for pulmonary test and heart check for all valves pumping and open. Forgot name. I do that. I've had several ischemic strokes and struggle to find words I know.. aggravating! I don't have High BP nor do I smoke. I do have antiphospholipid syndrome, Sleraderma and sjögren's plus Raynouds. I have lung cancer stage 3 maybe 4 because its manastisised?? They can't get to a active area that is 2.5 mm in size to biopsy as it's in the middle of a bunch of blood vessels.. I have to wait and let radiation and chemo work on all. Hopefully will disappear with that. Lung cancer is bad in the lung its 4.5 mm and the node on outside of lung same. They aren't operating to remove anything. The meds will make them go away I'm told. I'll be seeing