Is anyone using Dupixent for COPD?

@hicopd how much co pay did you have to pay through the speciality pharmacy, i have been getting my shots at dr office until heard from the speciality pharmacy same as medicare cap. pay the first 2100.00 then free

@hicopd i tho get the dupixent card was only for those that don’t have insurance or have insurance and can get it for 0, but people on social security can’t get that. unless you are below poverty.

Yeah, card doesn’t work. I have to pay my insurance copay. For Nucala, it’s $790.21/mo built I hit out of pocket max & then insurer pays 100%.

@hicopd Yes it will cost me 2100 out of pocket then free. So im just gonna do the financial assistance and see if i can get it through the company. It crazy what these 2 meds cost not counting all your other.

I don’t qualify for financial assistance and my out of pocket max is $3k/year. Drug prices and copays are really crazy expensive but unlikely to improve any time soon. I was lucky that my Feb and 1st March copays were waived. If I get credit for them, I’m nearly at my out of pocket max, $2370+, so only < $630 to go!

@hicopd Your last post led me to believe that you are taking both Dupixent and Nucala for your COPD. Have followed many, many of your posts which I believe were very solid in fact and accuracy. I am just curious. I have been on Dupixent close to three years. I am at the point though that the normal progression of the disease is catching up with me. And of course, very weary of the struggles to breath. I don't believe there is a wonder drug but perhaps something different would be more palliative.

I started with Dupixent but after 11 months, switched to Nucala because the arthlagia from Dupixent became intolerable. I’ve been on Nucala every 4 weeks since November and it’s the only thing that seems to be improving my resting saturation rates! My docs and I are encouraged that instead of being 92-93, they’re mow 94-96%! I’m also needing lower O2 for sleep—1.5 lpm instead of 2 and staying at 95-96%!

Thank you for your kind words about my posts. I try to be as accurate and informative as possible. I’ve been fortunate to have had access to excellent providers.

One option to consider & discuss with your providers that could be added to a biologic and some folks have found to reduce breathlessness is ensifentrine, a nebulized treatment. Some folks find it very helpful, others not so much.

I personally have not tried it but have read reports of folks who have. I am not normally breathless so don’t believe it would be helpful for me. I also have no chronic bronchitic component, so treatments that are particularly helpful to such patients tend ti be unhelpful for me.

@hicopd how did the dupixent effect you? Seems like the first couple day my breath is short. Sure has dried up nasal. I took 11 shots he took me off for bronchitis then I started back last Monday seems first 3 days Im tired and like i said sob

I don’t have chronic bronchitis. I have chronic asthma & emphysema. I didn’t notice drying or shortness of breath. I did notice aching joints. My resting saturation rates increased from 92 or 93 to 94 or 95. I also noticed not getting exacerbations. I was having 1-6/year from 2000 until covid isolation.

Eventually joint pain became so bothersome I was switched to Nucala. No exacerbations since starting these biologics.