Newb Question

@pattig09

Since I am an engineer graphs like this grab my attention (although not automatically my respect). Do you have the name/paper or any other information about this graph? I'd be curious as to what the numbers refer to.

Cheers.

Update: I did find the original paper. It was written about negative reactions to the covid vaccination. I am aware that some people have this issue but I am not one of them. I had two covid vaccinations before I actually caught the virus. The problem started after this.

Cheers.

@cometboy Have your doctors discussed "Dysautonomia"? It's refers to a group of disorders affecting the autonomic nervous system which controls automatic body functions like heart rate and blood pressure. Germany has taken the lead on 2 blood tests when individual Long Covid patients reported symptoms, those results were placed on a graph. Numbers in the attached graph indicate individual participants assigned to a given syndrome and/or syndrome intersections. Take a look at the symptoms overlap for ME/CSF, POTS, MCAS, and SFN (#65) as those individuals had ALL the symptoms for 4 diseases; ME/CSF, POTS, MCAS and SFN. If you have ALL symptoms for the 4 diseases and were diagnosed with just one of the symptom groups you reported without focusing on the other symptoms you have, treatments may need adjusting. Germany testing: altered receptor antibodies, most notably angiotensin II type 1; and, alpha-2B adrenergic receptor antibodies to determine those who are suffering from PACVS. Graphing showed them what to treat.

@pattig09

Thank you for posting this. It’s maddening to me how it can take years to get a diagnosis of dysautonomia. Fortunately I was persistent and am in recovery. This health issue can be debilitating.

@liz2025 The graph revealed unique (and often different) symptom(s) for 4 diseases that may be attacking the body immune systems , simultaneously. It was my 5 years of experiences that helped me to understand: specialized medicine nowadays leaves holes in full discovery. I thought this was significant enough to see the graph for Long Covid sufferers with continuing multiple symptoms from fatigue, brain fog, gut issues, heart issues, muscle problems, lack of sleep, pain in joints, loss of taste and smell, liver issues, (this list is huge for symptoms which showed up after being vaccinated for Covid). They can ask the treating physician for 2 tests: 1.) altered receptor antibodies, most notably angiotensin II type 1; and, 2.) alpha-2B adrenergic receptor antibodies to determine those who are suffering from PACVS. It is my hope that PACVS will be treated through the eyes of 'a team of physicians' with different medical expertise as a general rule. In the mean time, patients will continue to battle forward in finding answers.

I also suggest keeping a daily diary. You will begin to identify triggers. I have a hard time remembering things so it helped when going to Dr. There is a portion of your brain that controls the millions of nerves in your body including organs. Mine is damaged we think from Covid and the main cause of all my problems.

I had a shortness of breath with exercise, climbing my stairs, etc following covid as well; 2 of my doctors recommended LDN, starting with a dose of 1.5 mg because I don't take medications very well; I react to a lot of them.

After much research, good research and reading of some good results; in the first week, I took it at bedtime and upon waking the first day, I felt amazing and during the first week, I noticed that the shortness of breath that I had been having that the doctors couldn't figure out, went away, and it has stayed away.
I was prescribed LDN for a series of issues I retained from retaining a contrast dye in my system following an MRA (mri of the neck arteries) and I never took the covid vaccine because my doctor told me that my immune system was already compromised from retaining the heavy metal contrast dye in my system and they said that the vaccine would further compromise my immune system, as does having covid, as we now know.

So I didn't get the vaccine, but I did get covid one time and so I had some cross over issues that were acquired from the contrast dye and having covid. My immune system is healing. I know that because I keep my blood work; also know that there is a "comprehensive list of illnesses acquired following covid" list; should try to pull that up...heart stuff, diabetes, blood clots in the lungs, blood vessels, etc., tremors that have often being misdiagnosed as Parkinsons, and the list is long.

I have gone back and looked at my bloodwork starting in 2/2023 when I had covid, and immediately following covid, my numbers were ok; I have only looked at 3 of them recently and noticed in 2023 they were good, but in 2024 through 2025 they rose to bad numbers, these three being creatine, eGFR, and Glucose.

I started taking the LDN late June or mid July 2025 and can see where my numbers were at that time, then in bloodwork I did in September, 2025, after taking LDN for a couple of months, my numbers had rebounded back to a good place, and my shortness of breath has gone away, aches and pains in mucsles and joints, gone as well, so I am happy to be taking the LDN. It's benefits are many.