I am on Forteo injections. I beginning to think this is a money maker.

Posted by vmcgrantham @vmcgrantham, Apr 27 5:47am

I’ve been on Forteo for about 4 to 5 months and all I’ve been having is flu like symptoms. I’m still on and off. I’ve been having the jaw pain teeth pain like all my teeth hurt, sensitive teeth, my legs. I had previous fracture in my legs from a car accident and my legs hurt, but this on this medication so much all my muscles, including in my arms hurt like everything hurts and I’m wondering now if there’s a natural way to do this I’m wondering if this is a money maker cause I’m seeing that a lot of people are saying that these things do not help cure anything they just help maintain but a lot of people are having more breaks and then once you’re up, it really gets worse because they say that it like regresses after you get off the medication or injections so what good is that if I’m taking an injection and then I get off the injection and start taking natural stuff it’s saying that it regresses your bones more so what’s the sense of being on it if it’s gonna make it worse in the end I don’t wanna go on reclast, or prolia i’ve had many kidney problems in the past and I have an autoimmune disorder with thyroid, graves, disease, and just worrying about all this it’s just like I’m wondering if I should just go on like algaecal or goat, milk powder or something more natural because I just feel like this is a money market like they’re making you take these injections. They get get money and parts out of it, but it really is not doing anything. People who’ve been on this injections and medication stuff have known to have more fractures, loose teeth, job pain, all kinds of dental problems. I mean all kinds and I’m just wondering if it’s even worth it is it better just to take proper calcium D3, and K2’s and stuff I don’t know what to do and I cannot take calcium bicarbonate because that causes kidney stones and I almost had kidney failure because of all my kidney stones. I haven’t had any in a long time and I don’t want anymore and I’m just trying to figure out what to do anybody have any help with natural stuff instead of injections that are actually working and I’m hearing too that the DEXA scans aren’t accurate either I don’t know what to think and I don’t know what to believe any input please thank you

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

I'm sorry you are having all of this. Forteo isn't for everyone. Would your rheumatologist consider a trial of Tymlos. I don't know how you've tolerated Forteo for four months.
Reclast is mainly a threat to the kidneys during the first 9 to 11 days after the infusion. The risk can be lessened by a reduced dose. They know that 4mg is as effective as 5 for osteoporosis. And by a slower infusion, one hour instead of fifteen minutes. One endocrinologist orders a pre-infusion iv of fluids before Reclast. One clinic in Korea orders steroid before the infusion to reduce side effects. But some people do have long term side effects with Reclast.
Forteo may be the safest, but I don't think it's good for you.
Are your symptoms more intense in the four hours after injection or are they constant through the 24 hours.
The fatigue could be hypercalcemia. Is the rheumatologist monitoring your calcium levels.

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Profile picture for vmcgrantham @vmcgrantham

@gently the rheumatologist wants to put me on Reclast but that’s harder on the kidneys and higher risk of jaw neurcrosis. I do have two teeth implants and can cause problems. I feel like a mess because of all this. The forteo is the safe test but the joint pain tiredness, headaches and hurt so much. But off I go to Reclast that’s harder on the kidneys and jaw. You can’t get a medium ground but even if i stick with the forteo what do I take next .

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@vmcgrantham Hello, I am not telling you want to do but Reclast has ruined my life. Every pain I had it intensified it. Not one good thing to say about it. I thought I was done with the pain in my shoulders and neck two months ago. But I started the excruciating. Pain all over again. Not one doctor has helped me . I really think that I am exaggerating. So so much pain

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Profile picture for gently @gently

I'm sorry you are having all of this. Forteo isn't for everyone. Would your rheumatologist consider a trial of Tymlos. I don't know how you've tolerated Forteo for four months.
Reclast is mainly a threat to the kidneys during the first 9 to 11 days after the infusion. The risk can be lessened by a reduced dose. They know that 4mg is as effective as 5 for osteoporosis. And by a slower infusion, one hour instead of fifteen minutes. One endocrinologist orders a pre-infusion iv of fluids before Reclast. One clinic in Korea orders steroid before the infusion to reduce side effects. But some people do have long term side effects with Reclast.
Forteo may be the safest, but I don't think it's good for you.
Are your symptoms more intense in the four hours after injection or are they constant through the 24 hours.
The fatigue could be hypercalcemia. Is the rheumatologist monitoring your calcium levels.

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@gently no she doesn’t want me on that. She wants me to go on the Reclast . I was talking to somebody and they told me about kickbacks at Dr get so she gave me a website that shows you who gets kickbacks and I put my Dr in in the state and yes, she does get kickback from the stuff she sells.

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Profile picture for raelenewilma @raelenewilma

@vmcgrantham Hello, I am not telling you want to do but Reclast has ruined my life. Every pain I had it intensified it. Not one good thing to say about it. I thought I was done with the pain in my shoulders and neck two months ago. But I started the excruciating. Pain all over again. Not one doctor has helped me . I really think that I am exaggerating. So so much pain

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@raelenewilma I agree with you. I haven’t even started it yet but I’ve been doing a lot of research and I don’t go by what just the Internet says I go by with the actual company so when I looked up Forteo, I looked them up. I looked up rec class class is worse than the other one it has more kidney issues. I can’t afford to have kidney failure. I went through kidney stones and kidney failure. I don’t need to go through that again. That was excruciating painful and jaw necrosis no thank you I can’t handle that so I don’t wanna do that either. I’ve been doing my research and I thought about the Tymlos but my doctor absolutely said no that would hurt my kidneys too. The problem is with all this stuff is see some of these doctors get kickbacks and I didn’t know that I was talking to somebody else on drugs.com and you pull it in the things and you can get things that people have gone through and this lady gave me a website to look up to see if my doctor is getting a kick back from selling either this drug or any of the drugs that she keeps pushing on me and she keeps pushing it like she just won’t let me give up on it. She wants me on one of the other and then she’s telling me that I’m gonna have more bone problems and stuff. Maybe I will maybe I won’t. I’m still taking my calcium my D3 K2’s and the sick thing is is that an order for it to leave your bloodstream to go into your bones you have to have D3 in K2, which is more important than anything else or these shots or nothing because they don’t go directly into the bones they go to your bloodstream, but I looked it up and my Dr is getting a kickback. They’re getting money for everyone they sell, which is sick so their pockets are more important than my health.

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Profile picture for vmcgrantham @vmcgrantham

@gently no she doesn’t want me on that. She wants me to go on the Reclast . I was talking to somebody and they told me about kickbacks at Dr get so she gave me a website that shows you who gets kickbacks and I put my Dr in in the state and yes, she does get kickback from the stuff she sells.

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@vmcgrantham

What is your rheumatologists rationale for insisting on reclast rather than tymlos?

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Profile picture for gravity3 @gravity3

@vmcgrantham

What is your rheumatologists rationale for insisting on reclast rather than tymlos?

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@gravity3 I really don’t know. She didn’t answer me. She just said that she thinks that the Reclast is better but I don’t understand that she’s saying that the other one has pretty much the same effects as the Forteo does but the Reclast is more harmful for me could you get more kidney stones and kidney problems and there’s more chances of jawbone necrosis and I have had kidney stones and almost kidney failure so I shouldn’t be taking that. I don’t understand the only thing I could think of is like I looked it up and she gets these kickbacks they get paid for this more. They sell the better pay they get for it. I don’t know. I really couldn’t tell you.

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Profile picture for vmcgrantham @vmcgrantham

@raelenewilma I agree with you. I haven’t even started it yet but I’ve been doing a lot of research and I don’t go by what just the Internet says I go by with the actual company so when I looked up Forteo, I looked them up. I looked up rec class class is worse than the other one it has more kidney issues. I can’t afford to have kidney failure. I went through kidney stones and kidney failure. I don’t need to go through that again. That was excruciating painful and jaw necrosis no thank you I can’t handle that so I don’t wanna do that either. I’ve been doing my research and I thought about the Tymlos but my doctor absolutely said no that would hurt my kidneys too. The problem is with all this stuff is see some of these doctors get kickbacks and I didn’t know that I was talking to somebody else on drugs.com and you pull it in the things and you can get things that people have gone through and this lady gave me a website to look up to see if my doctor is getting a kick back from selling either this drug or any of the drugs that she keeps pushing on me and she keeps pushing it like she just won’t let me give up on it. She wants me on one of the other and then she’s telling me that I’m gonna have more bone problems and stuff. Maybe I will maybe I won’t. I’m still taking my calcium my D3 K2’s and the sick thing is is that an order for it to leave your bloodstream to go into your bones you have to have D3 in K2, which is more important than anything else or these shots or nothing because they don’t go directly into the bones they go to your bloodstream, but I looked it up and my Dr is getting a kickback. They’re getting money for everyone they sell, which is sick so their pockets are more important than my health.

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@vmcgrantham Hello, I am trying to find a lawyer right now . I wish we could get a class action suit going with this . I am sure you would agree it had ruined my life . I will feel better for a while then tremendous pains come. I went two months without any pain the came back with a vengeance . I don’t want this company to get a way with this. I am going to try and get enough women to get one going. What do you thinkRaelene

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Profile picture for raelenewilma @raelenewilma

@vmcgrantham Hello, I am trying to find a lawyer right now . I wish we could get a class action suit going with this . I am sure you would agree it had ruined my life . I will feel better for a while then tremendous pains come. I went two months without any pain the came back with a vengeance . I don’t want this company to get a way with this. I am going to try and get enough women to get one going. What do you thinkRaelene

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@raelenewilma Which bone drug are you taking that has given you these side effects. If it's Reclast, I read "there have been lawsuits against Reclast primarily due to allegations of serious side effects, including atypical femur fractures and kidney damage. Patients have claimed that the drug's risks were not adequately communicated, leading to significant injuries and medical expenses."

Instead of Reclast, why not Fosamax instead? At least if you experience bad side effects, you can stop taking it. But then you need to know the half-life of Fosamax (alendronate) is approximately 10 years after it is absorbed into the bone. So the drug remains in the body for an extended period, continuing to affect bone metabolism.

Before taking any bisphosphonate, read studies that have shown it offers minimal benefits for fracture prevention. There are discussions about this in this support group under "fracture benefits of bisphosphoates".

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Profile picture for daisy17 @daisy17

@raelenewilma Which bone drug are you taking that has given you these side effects. If it's Reclast, I read "there have been lawsuits against Reclast primarily due to allegations of serious side effects, including atypical femur fractures and kidney damage. Patients have claimed that the drug's risks were not adequately communicated, leading to significant injuries and medical expenses."

Instead of Reclast, why not Fosamax instead? At least if you experience bad side effects, you can stop taking it. But then you need to know the half-life of Fosamax (alendronate) is approximately 10 years after it is absorbed into the bone. So the drug remains in the body for an extended period, continuing to affect bone metabolism.

Before taking any bisphosphonate, read studies that have shown it offers minimal benefits for fracture prevention. There are discussions about this in this support group under "fracture benefits of bisphosphoates".

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@daisy17 I was on Forteo but my doctor wants to put me on Reclast because of the side effects. I was having with the forteo which was jaw pain, a lot of pain in my back legs and arms. I was getting severe headaches, but the jaw hurts the most so they want to put me on this other one, but this other one’s worse than the forteo so I’m at the point where I don’t wanna go on anything anymore she won’t give me any choices. She tells me it’s forteo ,Prolia or reclast. I think she’s getting kickbacks for it though.

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Profile picture for vmcgrantham @vmcgrantham

@daisy17 I was on Forteo but my doctor wants to put me on Reclast because of the side effects. I was having with the forteo which was jaw pain, a lot of pain in my back legs and arms. I was getting severe headaches, but the jaw hurts the most so they want to put me on this other one, but this other one’s worse than the forteo so I’m at the point where I don’t wanna go on anything anymore she won’t give me any choices. She tells me it’s forteo ,Prolia or reclast. I think she’s getting kickbacks for it though.

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@vmcgrantham I don't know about kickbacks, she's probably just following protocol. Do you know your DEXA scores and have you ever fractured? If you haven't fractured and your DEXA score isn't too bad, tell your Dr you want to take a break from medications to do more research and decide what you want to do. Bones change very slowly, so taking a year to decide what to do is reasonable, in my opinion. My DEXA scores are severe, -4.1 in my spine and -2.7 in my hips. I have parathyroid issues so can't take Forteo or Tymlos. I read Fosamax doesn't offer much as far as fracture prevention, so I decided not to take any drugs. I'm 76 and have never fractured. My Dr wants me to take Fosamax, even said he'd prescribe 1/2 the normal dose, but he respects my opinion to refuse meds at this time. I'm taking a lot of supplements and hoping my DEXA scores at least stay the same and don't progress.

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