Out of the box options

Posted by fastinghrt @fastinghrt, 1 day ago

Hello, I am looking for the expertise and experience of this group. I am scared and looking for hope.

To start I am diligently following all recommendations - BP managed to 105/70, no strenuous activity, and many more.

I am looking at stem cells, peptides and any other less common options for treatment. There are some early animal studies and preclinical research, but with the potential change in peptides, I have been looking more closely. I realize that there are many patient phenotypes and I am focused on non syndromic, tricuspid valve.

I am looking to see if anyone else has gone down the root of trying to find alternative treatments and willing to share.

Best,

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

upartist | @upartist | 12 hours ago

Hello fastinghrt. Your question is very interesting. I have a structural defect (a PFO) that was just repaired, in addition to a stable 4.4 aneurysm. I have been using a daily collagen peptide 1 and 3 supplement for about 2.5 years, in order to support vascular wall health. Your question is making me rethink this strategy, as I have revisited the topic and there is now more info available. Am I helping or hurting???? The non syndromic tricuspid valve is also a structural defect, with no genetic link. However it appears to have a strong association with occurrence of aneurysm. The collagen supplement appeared to provide vascular support at the time I researched it, and it seemed harmless. But maybe its actually the opposite. So I will be reading people's posts on this topic. Thanks!!!
Upartist