Meningioma tumor
Hi, I had a Meningioma tumor removed in 2013 but in December I was told it was back, my Dr said we would check in a years time, I just was wondering if anyone knew how fast it grows
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Thank you for your response.
@mkoch a great outcome either way and I'll take it. Got hurt a week ago Friday and today is first day with pain level now tolerable so I can start exercising tomorrow 🙃
Thank you our start for a positive group.
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2 Reactions@randallshields56 I know they have groups where you can just check in and start a new conversation. I believe it would be nice to have a listing of just feeling good about your day or thankful for that something that made your day awesome 👌
I have been diagnosed with a meningioma.... it has grown from 2.1 x 2.4 x 0.7 cm to 3.9 x 3.2 x 1.6 cm (AP x TRV x CC) from 2022 ro 2026. My doc keeps saying to remove it is "elective" surgery..... not an emergency. So am I supposed to wait till it becomes and emergency?? I'm getting a second opinion in 4 days.... thanks everyone.
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1 Reaction@ladytri I am glad you are getting a second opinion. That seems very large. Are you having symptoms?
@deblee Good Morning/afternoon/evening.. the only symptom I'm haveing is a headache in the morning..... I didn't even know about this till the CT scan in 2026 reported it (I went back to the report from 2022 and it's not mentioned). The neurosurgeon keeps saying removing it is "elective" surgery vs "emergency" I don't know if the neurosurgeon is saying "wait till it becomes an emergency" (don't like this approach) or is saying that to calms my nerves. My blood is also screwed up (anemia, early signs of CLL) so I don't know if surgery is an option until I get my blood issues resolved. Follow up with first neurosurgeon tomorrow (Wednesday) . Second opinion is Friday. I haven't been sick - except for colds - in years... This is really messing with my head. I work out 6x week, eat healthy, don't smoke, no drugs.....all the "right stuff" . Now this!
@ladytri
I am so sorry you are having to deal with this. Hopefully, you will get more answers on Friday with your second opinion. My neurosurgeon does not think my meningioma is causing my symptoms and monitors it with an MRI each year. Mine is much smaller than yours, though.
@ladytri: How wonderful that you are able to get your 2nd opinion so close to your appt. with the first neurosurgeon. A second opinion is of paramount importance. I think the neuro doc referring to removing the meningioma as an "elective surgery" is rather cavalier. Deciding to have breast implants is a true elective surgery; having a craniotomy to remove a meningioma is often one's only recourse if the tumor is too large to be radiated.
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1 Reaction@ladytri
From my personal experience, I agree on not planning to wait until it becomes an emergency. I waited because I didn’t know I had a meningioma until it bled, a stroke. I managed to call 911 before I passed out. I awoke 2 days later in the neuro ICU after emergency surgery. I was extremely lucky.
A small percentage of meningiomas bleed but if they do, the neurosurgeon who consulted with my son about performing the surgery, gave my odds of a meaningful life even with the surgery as 1 in 10. I most likely would die in the neuro ICU after the surgery. Without the surgery I most certainly would die.
Best wishes as you go forward.